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Long Covid Kids Opening Submission to the UK COVID-19 Inquiry | September 2025
29 September 2025. Module 8 of the UK Covid Inquiry opened before Baroness Hallett at Dorland House. Children and young people living with Long Covid were present and represented by Long Covid Kids and Long Covid Kids Scotland.

Long Covid Kids
Sep 294 min read


Silkstead Sunflowers Shine Bright for Long Covid Kids in 2025
We were honoured to be chosen as Charity of the Year by Silkstead Sunflowers, who dedicated their Sunflower Festival 2025 to supporting children and young people living with Long Covid. Thanks to the generosity of festival-goers, we’re thrilled to announce Silkstead Sunflowers raised an incredible £1451.68 for Long Covid Kids. hese funds will directly support our mission; helping us provide peer support, reduce stigma, raise awareness, and continue our advocacy.

Long Covid Kids
Sep 162 min read


Announcing the Winners of the Long Covid Kids Summer Poster Design Competition!
We are thrilled to share the incredible entries we received for the Long Covid Kids Poster Design Competition 2025 — and announce the winners!
Over the summer, young people aged 5 to 21 across the globe got creative to help raise awareness of Long Covid in children and young people. Whether it was about prevention, support, or education, each poster brought passion, insight, and originality.
With 35 entries in total, our international judging panel had a tough job choosing

Long Covid Kids
Aug 293 min read


One Step at a Time: How a 50km Charity Walk became a journey about Purpose and Perseverance.
At Long Covid Kids, we see every day the resilience it takes for children and young people living with Long Covid to k eep going when the...

Long Covid Kids
Aug 224 min read


When Engagement Fails: Why Long Covid Charities Resigned from the National Services Scotland Long Covid Network.
After 3+ years of dedicated involvement, Long Covid Kids Scotland and Long Covid Scotland have made the difficult decision to formally...

Long Covid Kids
Aug 55 min read


Design a Poster This Summer | LCK Poster Design Competition 2025
Long Covid Kids (LCK) is excited to launch a Poster Design Competition this summer — it's open to anyone aged 5-21 years and we’d love you all to join in!

Long Covid Kids
Jul 223 min read


Shining a Light on Long Covid in Children: One Workplace’s Incredible Support
At Long Covid Kids, we’re driven by the voices and stories of families navigating life with Long Covid—and we’re constantly inspired by those who turn personal experience into powerful action. One such champion is Jana, who nominated us as Charity of the Year at her workplace, Gravita, after facing the realities of Long Covid in children first-hand.

Long Covid Kids
Jul 173 min read


Our Amazing Marathan Runners for Long Covid Kids in 2025
Thank you to all of our Marathon runners, who ran to help raise awareness of Long Covid Kids.

Long Covid Kids
Jun 94 min read


Equity in research: a global consensus statement on the urgency of including children in Long Covid clinical trials.
We urge clinicians and researchers to amend existing protocols and design future protocols to include children in clinical trial design in order to avoid unnecessary delays and harm for children with Long Covid. We also urge a clear statement from the WHO prioritising and facilitating the regulation and funding for clinical trials inclusive of children with Long Covid.

Long Covid Kids
May 302 min read


Rewind: A Night to Remember – An Annual Charity Dance Show in aid of LCK
This year, our student-run Dance Society, part of the University of Birmingham’s MedSoc, put on another unforgettable annual charity...

Long Covid Kids
May 271 min read


Long Covid Kids joins other organisations to sign a joint statement for World ME Day, 12th May 2025
Key messages Today, on World ME Day, we stand with people affected by ME to deliver a simple message to the UK government: after...

Long Covid Kids
May 122 min read


Response from Ashley Dalton MP received 24th April 2025.
On March 26, 2025, we composed an Open Letter to The Rt Hon Wes Streeting and Ashley Dalton MP. On the 24th April 2025 we received a response from Ashley Dalton, which you can read below.

Long Covid Kids
May 64 min read


Will you Write to your MP in support of our Long Covid and M.E. campaign?
We have ONE final timely request to help us turn these calls for action into direct requests for Long Covid & M.E:
PLEASE WRITE TO YOUR MP.

Long Covid Kids
Mar 283 min read


Supporting Statements for the Campaign for Action on Long Covid and M.E. | March 2025
To mark the fifth anniversary of the first UK lockdown, we are delivering a letter and petition to the Department of Health and Social Care

Long Covid Kids
Mar 266 min read


Open Letter to The Rt Hon Wes Streeting and Ashley Dalton MP | March 2025
To mark the fifth anniversary of the first UK lockdown, we are delivering a letter and petition to the Department of Health and Social Care

Long Covid Kids
Mar 266 min read


Disabled, Discharged and Disappearing. A Report on Long Covid Clinics.
A study by Long Covid Support and Long Covid Kids has unveiled alarming gaps in Long Covid care. Clinics are underfunded and closing.

Long Covid Kids
Mar 176 min read


Welcome to Cherie Whitby, New Chair of Trustees | Long Covid Kids
Cherie Whitby brings a wealth of experience from a diverse career spanning programme management, accountancy, and law.

Long Covid Kids
Mar 82 min read


Invest in Long Covid & M.E Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW
Sign The Campaign On March 15th 2025, International Long Covid Awareness Day For Adults And Children With Long Covid AND M.E

Long Covid Kids
Mar 82 min read


The Doctor Will See You Now | Q&A with Dr Danilo Buonsenso & Long Covid Kids
For the first time ever, youth members of Long Covid Kids had the chance to put their questions about Long Covid straight to a doctor.

Long Covid Kids
Mar 84 min read


Members Meeting - Insights on the UK Covid Inquiry, Module 8
This is an opportunity for our members to ask questions, and gain insights from our legal team led by Jane Ryan of Bhatt Murphy. We will...

Long Covid Kids
Feb 182 min read
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