Parents & Caregivers
We are Here to Help, Guide and Support.
Caring for a child with Long Covid—or any long-term condition—can feel demanding, both emotionally and physically.
Caregivers report that balancing the needs of the entire family is a challenge, and can feel overwhelming at times.
In addition to our Support Services, Long Covid Kids provides resources to help, including information on carer support, disability benefits, and guidance for supporting siblings.
Let's keep in touch.
Where To Start
Beginning the journey of supporting your child with Long Covid, or a related condition, can feel overwhelming and uncertain.
You may be searching for answers, reassurance, or simply a starting point.
You are not alone, many parents share the same worries and questions. To help ease that first step, we’ve gathered five trusted resources that offer clear information. These will give you a strong foundation of knowledge and help reduce the sense of overload as you begin to understand and support your child’s needs.
Five Helpful Starting Points:
1. Watch the video series from
Long Covid Physio
A clear, gentle introduction to what Long Covid is, its common symptoms, terminology, pacing, and safe rehabilitation.
2. Seek Medical Support
Your GP is the first point of contact in the UK. They can help rule out other conditions, discuss symptoms and treatment options, and signpost to specialist services if needed. See our Resource on record keeping to help you prepare for appointments.
3. Locate Trusted
Peer Support Networks
Long Covid Kids Support Group, to connect with others, ask questions, and feel less alone.
4. Learn About Pacing & Energy-Management Strategies
Practical ways to balance activity and rest to support symptom management and meaningful engagement in daily life.
5. Be Prepared to Advocate for your Child
healthcare professionals do not receive mandatory training on Long Covid, and it is often poorly recognised. You may need to explain symptoms, share evidence-based information, and gently persist to ensure your child’s needs are understood and supported at school, in healthcare, and beyond.
Further Support
Who is this for?
Parents, Caregivers and Families of children and young people living with Long Covid and related conditions.
Long Covid Kids started connecting families in 2020. Founding members recognised the recognising the unique situation and the need to share information, and learn together. Families often describe this support as a “lifeline.”
Please see the the 'Children and Young People page.
Caring for a child with Long Covid—or any long-term condition—can feel demanding, both emotionally and physically.
Many caregivers find that balancing the needs of the entire family is challenging.
In addition to our Support Services, Long Covid Kids provides resources and resources to help, including information on; carer support, disability benefits, and guidance for supporting siblings.
Preventing Infection and Reinfection
Let's reduce the long term risks of infection associated diseases.
The best way to reduce new cases of infection associated illness, including Long Covid, is to prevent infections in the first place.
At LCK, we’ve been calling for stronger infection prevention measures since 2020, with a strong focus on clean air in schools, and other indoor spaces.
All children have a right to learn, play, and thrive in safer environments.