Take Part
Make a Difference with
Long Covid Kids
Has your life been touched by Long Covid, or a related condition?
Whether you're living with it yourself, supporting a friend or sibling, or just want to help raise awareness, there are so many ways to get involved with Long Covid Kids - and we'd love to have you on board!
Meet Our Youth Advisory Panel
Got something to say? We want to hear it!
Our Youth Advisory Panel is a group of children and young people living with Long Covid who share their experiences to help shape our projects and raise awareness.
Together, we make sure young voices are listened to in research, policy, and advocacy.
YAP is about creating chances for young people to be part of change, and to show decision-makers what really matters when you’re living with a long-term health condition.
Katie
Youth Advisor, Patient Involvement, Youth Peer Facilitator
Hi, I’m Katie, I’m 19 and I’ve had Long Covid for five years and am currently taking time out of education.
I moderate the Wednesday LCK Teen Connected sessions. I also co-edit the newsletter and have participated in research, interviewing peers for a co-produced study and running a writing workshop for an Arts based research study.
I love reading and writing and spending time with my dog Darcy.
Rosie
Youth Advisor, Artist, Curator and Youth Advocacy
Hi, I’m Rosie, I’m 20 and have had Long Covid for 4 years. I take part in advocacy in Northern Ireland. I was also involved in running a collage workshop for an Arts based research study. I have used my passion for art for advocacy at the Public COVID Inquiry and have now had two gallery shows, with the most recent, also sharing peers’ work.
Sanjana
Youth Advisor, Youth Peer Facilitator, Communications Support
Hi, I’m Sanjana, I’m 21 and I got Long Covid in 2021.
I moderate the Wednesday LCK Teen Connected sessions and co-edit the newsletter.
I am currently in my second year of Biomedical Science at the University of York. In my spare time, I like to read, watch TV and movies, and crochet.
Kitty
Youth Advisor, Advocacy & Communications Support
Hi, I'm Kitty, I'm 19 and been living with Long covid since 2020 and I am cuurently at uni. For a long time I didn't think was going to be an option, but I made it!
I've been using my lived experiene to raise awareness by taking part in interviews to get our voices heard, and I want to share waht I have learnt about going to uni as a young person with Long Covid.
Eden
Youth Advisor, Communications Support
Hi, I’m Eden (she/her), I’m 21 years old from Belfast, Northern Ireland. I’ve had Long Covid since March 2022.
I have been on the Youth Advisory Panel since November 2023. I co-edit the newsletter and have participated in research, interviewing peers for a co-produced study. I am also a volunteer for the Long Covid Support Charity as well as a few others.
I am about to start an Open University degree in Childhood and Youth Studies in October 2025. In my spare time, I enjoy reading, writing and spending time with my kittens.
Lucinda
Youth Advisor, Patient Involvement, Communications Support
Hi, I’m Lucinda and I’ve been living with Long Covid for over five years now!
I enjoy being part of the Youth Advisory Panel as - in addition to doing general advocacy work - I get to have a say in the direction of the charity and help with/contribute to projects and research that advance awareness of Long Covid.
I love to sing, act, draw and write screenplays in my spare time, as well as volunteering with children on a weekly basis.
Eli
Youth Advisor, Communications Support, Youth Peer Facilitator
Hi, I’m Eli, I’m 19 and have had Long Covid for 5 years.
I moderate and host the games for the Wednesday LCK Teen Connected sessions.
I love drawing and playing video games. I also love to read graphic novels and manga as I can’t read books, so if you ever need any recommendations I’m always free to chat on the LCK Discord.
Fundraise for LCK
Be part of the change!
Charities like Long Covid Kids need funding to support our work and to create real change for children and young people.
You can be part of that change by taking on a fundraiser of your own.
Think about what you love doing, your skills, hobbies, or even a personal challenge, and turn it into a way to raise money for LCK.
Every fundraiser, big or small, helps children’s voices be heard.
Gaming for Good
Host a sponsored livestream, gaming marathon, or tournament.
Art with Heart
Sell your artwork, crafts, or handmade jewellery or host a workshop to share a hobby.
Bake & Share
Organise a cake sale or “bake challenge” at school, a club or in your community.
Move Your Way
Set a challenge, like a walk, run, cycle, or swim. It could be solo, or as a group with friends or family.
Sing, Dance, Perform
Host a talent show, mini concert, or busking session, it could be at home, at school or in your community.
Book Swap or Readathon
Raise money by swapping books or getting sponsored to read.
Eco Challenge
Plan a litter pick, tree planting, or a plastic-free week and get sponsored.
Quiz or Games Night
Online or in person with friends and family.
Ways to Get Involved
Join Our Community
There are lots of ways to connect with our community and be part of the journey, explore below to see how you can get involved.
LCK Socials
Follow us on social media to stay up to date with upcoming events and news!
Click an icon below to be taken to our account.
Ideas to Raise Awareness
Help us to Educate Others
Help spread awareness about Long Covid by sharing your story. Your experiences can help others feel less alone and inspire change.
Read our guide on how to share your story. (LINK coming soon)
Be a Voice for Change
Love writing, art or music? Get involved in creative projects to help raise awareness and support others.
Creative Projects
Help educate teachers and classmates about Long Covid. We can provide you with posters, presentations, and materials to share! (LINK coming soon)
School Awareness Campaigns
Ways to Have Your Say
Who is this for?
Children and young people looking for health advice and Long Covid recovery support.
Have an idea for Long Covid Kids? We’d love to hear from you! Fill out our [Get Involved Form] and share your suggestions on how we can make a difference together.
Team up with young people whose lives have been touched by Long Covid. Whether you’re living with it yourself or supporting a friend or sibling, your voice matters! Join our panel to share your views, shape projects, guide research, and make a real impact.
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Join YAP - Email: Kirsty Stanley
Help us improve by sharing your thoughts and experiences through surveys and focus groups. Your voice counts! We advertise these opportunities in our newsletter and on our socials. Follow us to be the first to know.
Join our creative team to help produce exciting newsletters and podcasts! Share your ideas, write articles, interview guests, and create engaging content for young people.
If you're living with Long Covid or a related condition, your experience matters.
When you feel ready, you can use your voice in ways that suit you — sharing a story, feeding into research or projects, joining our Youth Advisory Panel, or helping with a podcast or the youth newsletter.
We aim to offer flexible, low-pressure opportunities and will signpost others; opportunities, capacity and projects vary.
Whatever you choose, we’ll guide you in your journey to help build skills and confidence at your own pace.