Our Mission
Our Work
Our work is led by lived experience and shaped by children, young people and families.
We work to improve understanding, support and outcomes for those living with Long Covid and overlapping illness, while advocating for safer environments and better prevention for all children.
Our Mission
Led by lived experience. Driven by community. Focused on change.
Our mission is to improve understanding, support and outcomes for children and young people living with Long Covid and overlapping illness — while working towards safer, healthier environments for all children.

Our Pillars
Click a section to jump straight to our most recent work in that area.

Awareness & Advocacy
We raise awareness of Long Covid and overlapping illness in children and young people, improving understanding, prevention and care by centring lived experience.
Working in partnership with children, young people, and families across health, education, and research, we build understanding, support healthier environments, and advocate for improved care and outcomes.
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Coming Soon
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Support for Children, Young People & Families
We connect and support children, young people and families living with Long Covid and overlapping illness.
Through community, shared experience and trusted information, we provide flexible, accessible support so families feel informed, empowered, and less alone.
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Long Covid Kids Choir was involved in an arts festival as part of a musical showcase.
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Research for Change
We contribute to and support research that improves understanding, informs care and strengthens outcomes.
Working alongside children, young people, families, clinicians and researchers, we ensure lived experience shapes research and drives meaningful change.
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Our CEO, Sammie McFarland, was on the panel of this event.
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Our CEO, Sammie McFarland, was part of the Forum Planning & Implementation Team for this event.
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