
Who is this for?
This page is for children and young people living with Long Covid or related conditions such as Myalgic Encephalomyelitis (ME), Postural Tachycardia Syndrome (PoTS), or Paediatric Acute-onset Neuropsychiatric Syndrome (PANS).
Whether you’ve received a diagnosis or are still trying to make sense of your symptoms, or you're here because someone close to you is unwell, you are not alone. This page offers support, information, and ideas to help you feel understood and connected.
Further Information
If you're living with Long Covid or a related condition, your experience matters.
When you feel ready, you can use your voice in ways that suit you — sharing a story, feeding into research or projects, joining our Youth Advisory Panel, or helping with a podcast or the youth newsletter.
We aim to offer flexible, low-pressure opportunities and will signpost others; opportunities, capacity and projects vary.
Whatever you choose, we’ll guide you in your journey to help build skills and confidence at your own pace.