Supporting children today, creating change for tomorrow.
Long Covid Kids works alongside children, young people, families and professionals to provide practical support today while creating lasting change.
We work to remove the barriers that can limit children's participation in childhood, improving understanding and support across healthcare, education, research and policy.
Information & resources
Trusted, accessible information to help families understand and navigate prolonged illness.
Education support
Practical guidance and resources to help children access education in ways that recognise their health needs.
Connection & community
Safe opportunities for children, young people, parents and carers to connect with others who understand.
Supporting self-advocacy
Practical information and tools to help children, young people and families understand their needs, communicate them clearly and advocate for appropriate support.
Support children & families
Living with prolonged illness can affect every part of a child's life. Families can find themselves navigating unfamiliar symptoms, healthcare, education and changing needs, often without clear information or appropriate support.
We provide trusted information, practical resources and opportunities for connection, helping children, young people and families feel better informed, supported and less alone.
Our work in action
From supporting thousands of families to contributing to national healthcare, education, research and policy, our work is helping improve understanding, support and the systems that shape children's lives.
Department for Education
Bringing the needs and experiences of children with prolonged illness into national education policy, including consultations on SEND, medical needs and young people not in education, employment or training.
NHS England
Contributing to national service development to improve care, treatment and pathways for children and young people living with prolonged illness.
Research partnerships
Working alongside researchers and young people to help shape research, bring lived experience into the research process and turn findings into meaningful resources and change.
Including our partnership in the NIHR-funded Covid Made Long study led by LSHTM.
UK Covid-19 Inquiry
As a Core Participant, helping ensure the experiences and needs of children and young people affected by Long Covid are part of the national record and inform the lessons learned for the future.
Support Children & Families
Living with prolonged illness can affect every part of a child's life. Families can find themselves navigating unfamiliar symptoms, healthcare, education and changing needs, often without clear information or appropriate support.
We provide trusted information, practical resources and opportunities for connection, helping children, young people and families feel better informed, supported and less alone.