Books

Resources

Long Covid is still being researched and understood.  

The Long Covid Kids Study.
While we wait for the research to be developed there is so much we can learn from other chronic inflammatory conditions. 

Long Covid is a multi-systemic condition that requires a holistic approach. 

We hope that all research will benefit children across all communities with chronic long term conditions, many of whom have been campaigning for years.
This page has links to websites we have found helpful.

PANS/PANDAS

PANS is a neuropsychiatric condition which is triggered by a misdirected immune response which results in an inflammation of a child's brain.

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MASTCELL ACTION

MCAS forms part of a spectrum of mast cell disorders involving proliferation and/or excessive sensitivity of mast cells, it has been identified since 2007. It features inappropriate mast cell activation with little or no increase in the number of mast cells, unlike in Mastocytosis*. MCAS causes a wide range of unpleasant, sometimes debilitating, symptoms in any of the different systems of the body, frequently affecting several systems at the same time.

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ME ASSOCIATION

We provide information, support and practical advice for people, families and carers affected by M.E. (Myalgic Encephalopathy), Chronic Fatigue Syndrome (CFS) and Post Viral Fatigue Syndrome (PVFS). We also fund and support research, and offer education and training.

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NHS LONG COVID

Advice on managing lingering symptoms of Coronavirus from the NHS Long Covid Library and Knowledge Services.

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NSPCC

Coronavirus (COVID-19) advice and support for parents and carers

Whether you're working from home with your kids for the first time or supporting children with anxiety due to coronavirus, we've got tips and advice for you.

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NATURE DOC

Integrated functional medicine supporting the body from the inside out.

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ABSENT

The Sense of Smell Project (SoSP) is a collaboration between patients with smell disorders and scientists. We are trying to learn more about what it is like to live with this condition and how people's lives change as a result. We are looking for experience clusters that might point the way to a better understanding of smell loss.

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DYSAUTONOMIA

Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System. The Autonomic Nervous System controls the "automatic" functions of the body that we do not consciously think about, such as heart rate, blood pressure, digestion, dilation and constriction of the pupils of the eye, kidney function, and temperature control.

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BRITISH DERMATOLOGY

 The British Association of Dermatologists  provide images of possible skin signs of COVID-19, collected by the COVID Symptom Study App, to help increase our understanding of the disease.

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