Book Stack

Resources

Nothing is yet certain with Long Covid. Medical research and understanding is in its infancy.

See the research and The Long Covid Kids Study sections on our website for more information.
While we wait for research there is so much we can learn from other chronic inflammatory conditions. 

Long Covid is a multi-systemic condition that requires a holistic approach to treatment. 

We hope that current research will benefit children across all communities with chronic long term conditions, many of whom have been campaigning for years.
This page has links to websites we have found helpful.

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BRITISH HEART FOUNDATION

The website features a coronavirus support hub with lots of helpful information. It also includes what Covid-19 means for you if you have a heart or circulatory condition

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DEPARTMENT OF WORK
& PENSIONS

Medical guidance for DLA decision makers (child cases): staff guide

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PANS/PANDAS

PANS is a neuropsychiatric condition triggered by a misdirected immune response resulting in

inflammation of a child's brain.

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NATURE DOC

Integrated functional medicine supporting the body

from the inside out

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ZERO COVID ALLIANCE

Zero Covid Alliance focuses on gathering all the COVID community efforts across the globe, create new ones by providing accessible information based on the circumstances in the area, and empower the general public in making informed, health-conscious decisions.

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DYSAUTONOMIA

Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System

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NHS LONG COVID

Advice on managing lingering symptoms of Coronavirus from the NHS Long Covid Library and Knowledge Services

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LONG COVID SOS

Recognition - Research
Rehab

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SCOTTISH INTERCOLLEGIATE GUIDELINES NETWORK

A booklet for people who have signs and symptoms that continue or develop after acute COVID-19

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ME ASSOCIATION

Provides information, support and practical advice for people, families and carers affected by M.E. (Myalgic Encephalopathy), Chronic Fatigue Syndrome (CFS) and Post Viral Fatigue Syndrome (PVFS)

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LONG COVID PHYSIO

Founded November 2020 by Physiotherapists living with Long COVID. Resources and advice on exercise and pacing.

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LONG COVID SUPPORT

Long Covid Support was formed by a group of people struggling to recover from Covid-19, who found each other online and have been facilitating international peer support and campaigning in the UK for recognition, rehabilitation and research into treatments since May 2020

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MASTCELL ACTION

MCAS is part of a spectrum of mast cell disorders involving proliferation and/or excessive sensitivity of mast cells. MCAS causes a wide range of symptoms in any of the different systems of the body, frequently affecting several systems at the same time.

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ABSENT

The Sense of Smell Project (SoSP) is a collaboration between patients with smell disorders and scientists.

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BRITISH DERMATOLOGY

The British Association of Dermatologists provide images of possible skin signs of COVID-19, collected by the COVID Symptom Study App, to help increase our understanding of the disease.

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NSPCC

Coronavirus (COVID-19) advice and support for parents and carers
Whether you're working from home with your kids for the first time or supporting children with anxiety due to coronavirus, we've got tips and

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