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Galeria objawów Long Covid Kids Our trusted partners are listed below. Working together, sharing knowledge in collaboration to overcome COVID-19 challenges and move towards shared goals. United Kingdom Long Covid Support Read More Long Covid SOS Read More Long Covid Physio Read More Long Covid Wales Read More Long Covid Europe Read More CoSchools Read More NHS - National Health Service Read More NIHR - National Institute for Health Research Expert Group Read More The APPG - Fit & Healthy Child Read More Royal Society of Medicine Read More Patient Led Safety Learning Read More ​National Voices Read More International WHO - The World Health Organisation Long Covid Forum Read More ISARIC - International Severe Acute Respiratory & Emerging Infection Consortium Read More Zero Covid Alliance Read More

FAQs Zawarliśmy kilka często zadawanych pytań, które otrzymaliśmy pocztą elektroniczną od rodziców, szkół i opiekunów Nie udajemy, że znamy wszystkie odpowiedzi, ale mamy nadzieję, że to pomoże. Are PIMS-TS and MIS-C the same thing? Yes. In the UK, PIMS-TS stands for Paediatric Inflammatory Multisystem Syndrome, temporally associated with SARS-CoV-2. It is often shortened to PIMS. In the US and internationally it is referred to as Multisystem Inflammatory Syndrome in Children (MIS-C). PIMS-TS is a treatable condition requiring prompt medical treatment. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What is PIMS-TS? PIMS-TS is a new systemic inflammatory disease that mainly affects children and young people. The syndrome is caused by a SARS-CoV-2 infection leading to inflammation throughout the body. Inflammation is a normal response from the body’s immune system to fight infection. However, sometimes the immune system can go into overdrive. In PIMS the inflammation is excessive and damaging to the body. For a disease to be classed as rare it affects less than 1 in 2000. Since March 2020 there have been almost 3000 cases of PIMS-TS in the UK alone. PIMS-TS is a treatable condition requiring prompt medical treatment. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What are the symptoms of PIMS-TS? All children with PIMS-TS will have a fever >38 degrees C which persists for 24 hours or longer and may not reduce with over-the-counter medications. There is a wide range of other symptoms that children might have, including: Rash Tiredness, sleepiness or fatigue Muscle pain Tummy pain or cramps Red and cracked lips, often swollen Strawberry tongue Swollen fingers, toes or hands and feet, often red Cold hands and feet Peeling skin on hands and feet Headache Red bloodshot eyes Muscle aches and pains Diarrhoea and vomiting Racing heart Dizziness Swollen neck glands Unexplained irritability PIMS-TS is commonly misdiagnosed because: 1. It is a new syndrome 2. It is not commonly seen by doctors 3. Because symptoms are similar to other childhood conditions. 4. Children who experience PIMS-TS may have had an asymptomatic infection 5. Children may not have been previously unwell with COVID-19 6. Children can seem to recover from the acute infection and then develop PIMS-TS 7. The symptoms of PIMS-TS generally don’t appear until 4-6 weeks after SARS-CoV-2 infection. Because PIMS tends to develop after the infectious stage, a PCR test is unlikely to be positive for SARS-CoV-2 at this time. Tell your medical professional if your child has had a positive COVID-19 test or is likely to have been exposed to Covid-19. As with Long Covid, a positive COVID-19 test is not essential for diagnosis. However, knowledge of exposure to Covid-19 supports the diagnosis. We don’t yet know enough about how frequently children who get PIM-TS go on to experience Long Covid. Long Covid Kids have been highlighting in official meetings that non-hospitalised presentations consistent with PIMS have been seen in our support services since 2020. PIMS-TS is a treatable condition requiring prompt medical treatment. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What should I do if my child is unwell with the symptoms of PIMS-TS? PIMS-TS is a treatable condition requiring prompt medical treatment. If you think that your child may have PIMS-TS or you are concerned, call your GP or NHS 111 (UK) immediately. If your child develops chest pain, call Emergency Services on 999 (UK) Whilst most children won’t be seriously unwell with SARS-CoV-2 infection, some children may develop PIMS-TS. The most important thing to remember is that any child who is seriously unwell needs to be treated quickly – whatever the illness. There aren't any specific tests for PIMS. Doctors will consider the information available and rule out other more common conditions that cause similar symptoms – including Kawasaki Disease, Sepsis and Toxic Shock Syndrome. Finally, the doctor will be able to work out what treatment is best for your child. If your child is not diagnosed with PIMS and continues to have symptoms consistent with PIMS please get a second opinion. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians Are Black or Asian children more likely to be affected? Children from all ethnic minority backgrounds are reported to be affected by PIMS. There have been more children affected by PIMS who are from Black and Asian backgrounds, but it is not yet clear why. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What if my child has not had COVID-19? Children can experience asymptomatic illness with COVID-19. This means a child may have had COVID-19 without showing any symptoms. Seek medical advice if your child has the symptoms of PIMS even if you don't think they have previously had COVID-19. The doctors will rule out other more common conditions that cause similar symptoms – this includes things like Kawasaki Disease, Sepsis and Toxic Shock Syndrome. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians How is PIMS diagnosed and treated? Doctors check how well various organs are working and perform blood tests to look at the levels of inflammation in the body. These results together with symptoms guide the doctors to a diagnosis of PIMS. PIMS can be treated with a combination of medicines to reduce inflammation in the body and temporarily “switch off” the hyperactive immune system • Intravenous immunoglobulin (IVIG). • Corticosteroids • Anti-clotting medicines Aspirin and Dalteparin /Clexane) • Biologic medicines (Anakinra and Tocilizumab) We don’t yet know enough about how frequently children who get PIM-TS go on to experience Long Covid. Long Covid Kids have been highlighting in official meetings that non-hospitalised presentations consistent with PIMS have been seen in their support services since 2020. Treatment must be prescribed by a doctor. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians Are children hospitalised with PIMS? For a disease to be classed as rare it affects less than 1 in 2000. Since March 2020 there have been almost 3000 cases of PIMS-TS in the UK alone. Find more information in the Long Covid Kids Child Specific COVID-19 Infection Analysis Blog Updated March 2021 More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians Do children die from PIMS? Until December 2021 we were unable to find any public data. In December 2021, 1 child PIMS-TS death was reported. Updated Feb 2022 What follow up care should be offered to a child recovering from PIMS? According to the American Academy of Paediatrics (AAPS) children diagnosed with PIMS should receive; Outpatient paediatric cardiology follow-up starting 1 to 2 weeks after discharge from the hospital. Timing should be determined in consultation with a pediatric cardiologist Children with a myocardial injury must have cardiology directed restriction and/or release for activities. Children who receive steroid therapy or treatment with biologics should receive follow-ups with the paediatric rheumatologist after discharge. Primary care follow-up is recommended for all patients. Children and young people usually recover well from PIMS. Some children and young people may develop Long Covid. Should patients with a history of PIMS receive the COVID-19 vaccine? According to the AAP in the USA children with a history of PIMS / MISC should consider delaying vaccination until after they have recovered from illness (including a return to normal cardiac function) and for at least 90 days following their diagnosis of PIMS /MIS-C. Currently, there are limited data about the safety and efficacy of the COVID-19 vaccine in children with a history of PIMS / MISC. It is recommended that paediatricians and families should participate in shared decision making and consider the risks and benefits of COVID-19 vaccination for each patient. The CDC offers additional guidance. Children who have received monoclonal antibodies or convalescent plasma as part of their treatment should wait at least 90 days before receiving the COVID-19 vaccine. What is Long Covid? Long Covid is the term given to the ongoing signs and symptoms caused by SARS-CoV-2 infection. It is generally used to indicate symptoms and clinical signs that remain unresolved for four weeks or longer. Symptoms of Long Covid can also appear some time after an asymptomatic infection. Long Covid was coined by patients who challenged the early COVID-19 guidelines that stated people recovered from mild cases within two weeks. It is called other terms around the world such as Post-COVID-19, Post Covid Condition, and Post-Acute Sequelae of COVID-19 (PASC). Long Covid was first recognised by patients at the beginning of the pandemic when they noticed that symptoms such as those of pneumonia, chilblain like sores and many others were not resolving with time. This history has been peer-reviewed and published Research conducted by both patients and clinical scientists has since proven that the prolonged signs and symptoms of SARS-CoV-2 infection can include damage and dysfunction to all body systems and organs. Symptoms range from chronic loss of smell and fluctuating rashes to neurological and neuropsychiatric symptoms. Some children living with Long Covid have also eventually received a new diagnosis of conditions such as Paediatric Acute-Onset Neuropsychiatric Syndrome (PANs), narcolepsy and organ damage. A booklet published by the National Institute of Health and Care Excellence (NICE), Scottish Intercollegiate Guidelines Network (SIGN) and Royal college of General Practitioners may help explain more. There is no specific test or biomarker for Long Covid and diagnosis is generally by exclusion of other illnesses and syndromes. Some specific tests like a SPECT scan, however, can reveal covid related damage, such as damage to the small vessels in the lung. Many people living with the disease were previously fit and healthy. Scientists are currently working hard to discover biomarkers for Long Covid and there are a number of promising studies nearing completion. NICE produced a rapid guideline on the management of Long Covid in November 2021. They described Long Covid as the presence of signs and symptoms that develop during or following an infection consistent with COVID-19 which continue for 12-weeks or more and are not explained by an alternative diagnosis. This includes both ongoing symptomatic COVID-19 (from 4 to 12 weeks) and long term consequences of COVID-19 (12-weeks or more). Long Covid Kids is referenced as a resource in this document. See Long Covid Physio for more information. How much do we understand about Long Covid? The National Institute for Health Research (NIHR) Second Themed Review on Long Covid stated there may be grounds to understand Long Covid as up to 4 syndromes with different underlying causes and treatment needs. These could include: Long Term Organ Damage Post Viral Syndrome Post Intensive Care Unit (ICU) Syndrome Potentially an entirely novel syndrome separate from the others that could more specifically and uniquely be identified as "Long Covid". It is important to note that these long-term effects on health may coexist in the same person. A note on Post ICU syndrome: Post ICU syndrome is a well known phenomenon in medicine and points to the long-term impact of the intensive care experience on a patient. Doctors and researchers must distinguish the effects of Post ICU syndrome from the damage caused directly by Covid. They both can persist even after hospital discharge. Most children do not need ICU treatment for Covid and related conditions, but this might happen in some cases, for example, with PIMS/ MIS-C. These syndromes are consistent with the experiences shared in Long Covid Kids Support Services. It's going to take years to understand the full impact of SARS-CoV-2 but there are many studies underway seeking to understand and track Long Covid in the UK and globally. Long Covid Kids are proud to be involved in coproducing research and representing lived experiences. Long Covid Kids and others who are speaking up for children are also working hard to ensure transparency of data. As it stands the prevalence of Long Covid is not counted in UK statistics nor do we know the outcome of the child Covid-19 hospital admissions each month. Long term friend to Long Covid Kids, Dr Elaine Maxwell, has recently called for a National Sentinel Audit of Long Covid to obtain standardised data. We do however, have the benefit of our world renowned Office for National Statistics estimates and hope that this vital reporting service will continue. Who can get Long Covid? Anyone, of any age can get Long Covid regardless of the severity of COVID-19 infection. Asymptomatic infection can lead to Long Covid Mild infection can lead to Long Covid Severe infection can lead to Long Covid Long Covid is more often found in non-hospitalised people. Are some people more 'at risk' of getting Long Covid? We don't yet know which children will develop Long Covid. However, early data indicates that those who fall into the following groups appear to have increased risk factors; Female Being young, fit, and healthy Atopy - eczema, asthma, hay fever. Allergy to animals / cats Previous Post Viral Fatigue Ehlers-Danlos syndromes Fibromyalgia Irritable bowel syndrome We need more research to answer this question. Most people recover well from Sars-CoV-2 infection. Anyone who gets COVID-19 may develop symptoms of Long Covid. When do the symptoms of Long Covid start? New and ongoing symptoms lasting more than 4 weeks after COVID-19 infection could be Long Covid. Long Covid most often occurs at around 4-6 weeks after initial COVID-19 infection but can immediately follow the acute phase of COVID-19 infection, or develop at a later date too. It is not uncommon for children to have a gap between COVID-19 infection and Long Covid. Due to the delay in onset of the symptoms of Long Covid we recommend giving children time to convalesce after COVID-19 infection and be cautious about rushing back to activities, including education. It is well documented by people with lived experience, and from other post-viral conditions, that activity can exacerbate symptoms significantly. It is wise to take a cautious approach. For more guidance on recovery please see our support resources developed by people living with Long Covid for families. Cautious Tortoise - #LessHareMoreTortoise Pacing Penguins - #PacingPenguins Tipis for Teachers - #Tips4Teachers How common is Long Covid in children? The NIHR funded paediatric study into Long Covid is called the Clock Study. Their initial findings published in August 2021 showed that 14% of children can go on to develop Long Covid. This means about 2-4 children in each classroom could statistically develop Long Covid. How much impact can Long Covid have on daily life? Long Covid can significantly impact the daily life of children and young people. At the start of 2021 LCK conducted a study of our members which is published as a pre-print. This bar chart shows the effect of infection on children as reported by their families. Some children have one or two symptoms that can impact their daily life occasionally. Some children are living with chronic and disabling symptoms that significantly impact their daily life a lot. Some children have life-altering symptoms that significantly impact their daily life a lot. This bar chart shows some of the specific ways that families reported their children were affected. Physical Activity "Overall, we found that most children had worse activity levels than before infection, since, at the time of the survey, 21.2% were currently unable to enjoy any activity and 30.2% enjoyed the occasional activity but usually had an increase of symptoms after" Mental Health "Parents reported a wide range of neurocognitive symptoms, including lack of concentration, difficulty processing/remembering information or understanding instruction, short term memory issues and struggles to find the right words" Our study is representative of the experiences of children living with Long Covid and evidences the need for further research into the impact of COVID-19 on children. Does my child need to have a confirmed positve COVID-19 or antibody test to receive a diagnosis of Long Covid? No a doctor can make a clinical diagnosis without evidence of a confirmed COVID-19 test. WHO Clinical Case Definition A negative antibody test should not be used to exclude Long Covid as a diagnosis. Research shows that 36% of people living with Long Covid don't seroconvert and women are 4x more likely to seroconvert. This means people living with Long Covid may not develop antibodies. When can my child receive support for their symptoms? In the UK any child that has symptoms of COVID-19 for more than 4 weeks is eligible for a referral to a NHS Long Covid Hub. To obtain an appointment a GP must refer children to the local paediatric team. If the local team is unable to offer support children can be referred to the nearest Long Covid Hub. You do not have to live in the same area as the hub to receive a referral. Find a hub. ​ How long will it take for my child to get better? We don't know how long it will take for each child to get better from Long Covid. Reports of experiences from families vary. Some studies report that children get better between 3 - 6 months. ​ Many children in our support group have been ill since March 2020 and continue to experience relapsing and remitting symptoms that significantly impact dailly life. This means their symptoms can come and go, and can mild or severe. Some children have been ill since March and report to feel '"85% recovered" if they follow their individualised health regimes, including Pacing. See child specific guidance in Pacing Penguins. ​ It is not uncommon to have a period of apparent recovery and then develop symptoms again 6 months later. Some families report new symptoms over a year after infection. It is useful to remember that recovery isn't linear. This means that the path to recovery isn't a straight line. For most people it is very wiggly. Symptoms can increase and decrease in serverity. This means symptoms may come and go and they may sometimes be better, and sometimes be worse. What are the symptoms of acute COVID-19 infection in a child or teenager? Like adults, children can have an asymptomatic (displaying no symptoms), or symptomatic acute COVID-19 infection. A comprehensive list of COVID-19 symptoms can be found on the CDC website. The NHS updated its symptoms list in April 2022 Long Covid Kids have been calling for an improved COVID-19 symptoms list since, winter 2020, from the NHS and Government websites because the ‘classic’ three symptoms of cough, loss/change of smell/taste, and fever do not appear to pick up early infections in children. A survey of members in our support group showed that children often present with: Rashes Fever Sore Throat Headaches Nausea Emotional Dependency Mood changes Diarrhoea Tummy Pain Cold Like Symptoms Since Omicron children coming through our support services can also report: Pain Bloating Joint Pain We are deeply concerned that free testing has been withdrawn. Accessing ongoing support without a positive test can be more challenging and we advise getting a PCR or LFT test if possible. Please seek medical attention whenever your child is unwell. I think my child or teenager has COVID-19, when should I get a test?" Get a test immediately if you can. The following info was added before free. testing was withdrawn in the UK. We stand by this recommendation but recognise that it may not be possible to get a test. Please BOOK a COVID-19 PCR test immediately if you suspect COVID-19 infection. Any sign of being unwell in a child could potentially be a COVID-19 infection. Please see the FAQ above on symptoms for more information on the typical symptoms children may present with. Children often present with different symptoms to adults, listen to your gut instinct and protect your community. You know your child best. A confirmed positive COVID-19 test will make it easier to access medical support for your child should they go on to develop Long Covid and help to accurately record the number of child COVID-19 cases. For moral, emotional, or practical support please join our support services where you will find a wide range of experiences from families around the world. Does it matter if I don’t get my child tested? In short, Yes. Register any positive result Not only does it make the numbers of child COVID-19 cases appear lower if you don’t test, but parents and carers report it is harder to get ongoing medical support, if needed, without a positive test result. Without a test, you may find it difficult to get the correct diagnosis, and you may get misdiagnosed. The government should use the data to inform their decision-making. My child has passed the isolation stage but still has symptoms, do they still need to isolate?" We are not qualified to advise. When Test and Trace contact you they should advise on the dates for isolation (usually a period of 10 days from symptoms or positive test) and on the circumstances under which your child should remain isolated. If they don’t, do feel free to ask, you can phone 119 if you have any queries. However, many children with Long Covid have had ongoing symptoms for many months (some have been struggling since early 2020) and they are not in isolation and not considered to be infectious. If your child has ongoing symptoms past the initial isolation stage do contact your GP for further advice and guidance. Can my child get COVID-19 again? Can you get COVID-19 more than once? My child has COVID-19, can the rest of the household get reinfected?" Yes, there is growing evidence that anyone can get reinfected with COVID-19, even after vaccination. This is particularly the case as the virus develops new variants. There are multiple reports in our support services of reinfection, with some reports of up to 4 confirmed infections. Some children have antibodies after initial infection, others do not. Further research is required to understand more. Recent research shows that antibodies wane at 6-8 months. Where possible isolate any positive cases away from the rest of the household and particularly those who are clinically vulnerable although we recognise that this is not easy with very young children. Other mitigations you may consider are using masks, improving ventilation in the home by opening windows, hand washing, and wiping down frequent contact surfaces such as light switches, door handles, and the bathroom. Make sure to flush the toilet with the seat down. Updated April 2022 We now have reports that some children who did not develop Long Covid after their 1st COVID-19 infection, have developed Long Covid with a 2nd or 3rd infection. Children who have Long Covid, and are reinfected report a mix of experiences, some experience no change in symptoms, others experience significant relapse. PIMS-TS Please see What is PIMS for more detail. Paediatric inflammatory multisystem syndrome temporally associated with SARS-CoV-2 (PIMS-TS) is also known As Multisystem inflammatory syndrome in children (MIS-C). It is often referred to as PIMS-TS or PIMS for short. PIMS is a new condition triggered by a SARS-CoV-2 infection and isn't common. It can be detected early and treated successfully. All children with PIMS will have a fever, which persists over several days. There is a wide range of other symptoms that children might have too. A few of these include tummy pain, diarrhoea, vomiting, rash, cold hands and feet and red eyes. These symptoms can also be found in other illnesses. The most important thing is to remember that any child who is seriously unwell needs to be treated quickly – whatever the illness. If the child has a temperature of 38⁰ or higher, cold hands and feet and is sleepy, call your GP or 111. If symptoms persist and you have not been able to speak to either a GP or 111, take your child to the nearest A&E. If your child doesn’t have these signs of being seriously unwell but you are still concerned, talk to your GP. My child is experiencing sudden onset of mental ill health symptoms such as Obsessive Compulsive Disorder, Anxiety or Tics or Hallucinations. Is this linked to COVID-19? What is PANS/PANDAS?" Some of these symptoms can be a linked to fever or the post viral condition however this could be a neuropsychiatric condition. PANS and PANDAS are closely associated with infections and viruses. Both the initial onset and subsequent exacerbations are usually incited by a variety of childhood infections. From: PANS PANDAS UK PANS (Paediatric Acute-onset Neuropsychiatric Syndrome) PANS is a neuropsychiatric condition which is triggered by a misdirected immune response which results in an inflammation of a child's brain. ​PANS is a clinical diagnosis and there is no specific test which will prove or disprove the condition. In order for a diagnosis to be made, presentation of the following symptoms must occur: PANS Diagnostic Criteria ​An abrupt, acute, dramatic onset (usually within 24-48 hours) of obsessive compulsive disorder (OCD)* or severely restricted food intake** along with two or more of the following symptoms which are not better explained by a known neurologic or medical disorder. ​Anxiety (heightened anxiety, separation anxiety, irrational fears, panic episodes) Tics Emotional lability and/or Depression Irritability, Aggression, and/or Severely Oppositional Behaviours Behavioural (Developmental) Regression (increase in temper tantrums, loss of age-appropriate language, clingy behaviour not related to anxiety). Sudden Deterioration in School Performance (due to difficulties with memory, concentration, hyperactivity, impulsivity, new deficits of visuospatial skills) Motor or Sensory Abnormalities (dysgraphia, clumsiness, tics, new sensory sensitivities to light, noise, smell, taste or texture). Insomnia and/or Sleep disturbances Enuresis and/or Urinary frequency Whilst not part of the diagnostic criteria, in approximately 25% of cases there have been reports of Psychosis and/or Hallucinations PANDAS (Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) ​PANDAS is a subset of PANS. Similarly, it is a neuropsychiatric condition which is triggered by a misdirected immune response to a Streptococcal infection which results in an inflammation of a child's brain. PANDAS Diagnostic Criteria ​Usually starting with an acute onset of obsessive compulsive disorder and/or tics, particularly multiple, complex or unusual tics. PANDAS symptoms can then appear to wax and wane with the child experiencing flares periodically, following illness or periods of stress. The child is usually between the ages of 3 and puberty when first symptoms occur and usually appear following a streptococcal infection such as Sinusitus, Ear infections or Scarlet Fever. In some cases children can carry the streptococcus bacteria without showing signs of illness. Whilst it is not a diagnostic requirement, in addition to OCD* and/or tics, children may also experience co-morbid symptoms similar to those seen in PANS.​ * OCD may include any of the following: Contamination obsessions and compulsions Obsessions that harm will come to others and/or related compulsions Sexual or religious obsessions Repeating compulsions Symmetry and exactness obsessions Ordering/arranging compulsions Counting compulsions Checking obsessions or compulsions Excessive reassurance seeking Need to touch, tap or rub Intrusive images, words, music or nonsense sounds Ritualised eating behaviours​ ** Severely Restricted food intake may be related to contamination fears, obsessional fears of choking, or other obsessional fears including a new obsession with body image or weight. ​ Make an appointment with your GP to discuss your concerns. Your GP may not be aware of PANS/PANDAS so do direct them to https://www.panspandasuk.org/for-medical-professionals and work together to determine what treatment to implement. Where can I find out more about COVID-19 Vaccines for children and young people? Please see The Royal College of Paediatrics and Child Health for information on vaccines. Information about the vaccine, its safety and side effects has been published by the UK Health Security Agency. Vaccination is not thought to eliminate the risk of Long Covid but early evidence does show that it may reduce risk. How can I reduce risk? Avoiding infection is the only known way to avoid Long Covid. LCK recommend following the advice of the World Health Organisation who have a specific page for young people. Layers of mitigation can help reduce risk of infection. Distancing Mask Wearing Hygiene Ventilation & Fresh Air Vaccinations Isolate when ill Videos Understand more about transmission. Find a mask that fits your face. Schools Support your school to encourage any children with any symptoms to stay home. This simple practice can help schools stay open and offer in person learning. Schools can offer hybrid learning options to maintain access to education for children and young people well enough to continue education at home. What support services do LCK offer? Long Covid Kids offer three online services. Site membership, registration and consent are required. We take safeguarding seriously. LCK Connected Guided Zoom Hang Outs are hosted by our team of volunteers for children and teenagers from 6 - 17 years, and the parents and caregivers who care for them. Participants are required to become a member of our website and compete our registration form before using this service. 6 - 12 Years Teens Parents & Caregivers Discord 13+ Facebook Groups Our moderated Facebook groups offer peer to peer support and signposting for families of children & young people living with Long Covid. A Facebook account & membership consent is required. Who are LCK support services for? Long Covid Kids support services are for families, children and young people living with Long Covid from around the world. Parents and Caregivers LCK Connected ChatBox Facebook Children and Young People ages 6 - 17 LCK Connected 6+ Chat Box 8+ Under 8's We are fundraising to be able to extend our services for under 8's. We are inclusive We believe in mutual respect, dignity, fairness, care and equality. We welcome and support all children, young people, their families and caregivers, from every community, without exception.We recognise the challenges families can face in obtaining a diagnosis and welcome members who have had suspected or confirmed COVID-19 infection living with ongoing symptoms. Register to join How do I register for the support services? How to Register Become a member of the WEBSITE using your name and email address. You can do this HERE. Check your inbox / spam folder for an email. Click the button in the email to complete the registration and consent form. Complete the form in full. Receive your 'Confirmation' email and login to access our support services. Login using the LOGIN button at the top of the website. Once you have logged in you can visit the ChatBox Members Page to view the forum and start chatting. Visit. your website profile to add your photo, edit your notification preference and use our support services any time. LCK take the safeguarding of children and young people seriously and require each person using our services to complete the registration process. This helps us to adhere to our Safeguarding Policy. Troubleshooting Please check you are logged into the website. To check that you are logged check you can see your name / profile showing in the top bar of the website. When you are logged in you can edit your notification preferences. There are other FAQs that you can read that might help too. For ongoing troubleshooting issues please contact supportsevices@longcovidkids.org for support. Are LCK support services free? Yes our services are free. We are a charity and rely on donations. Donations are welcome but not expected. Are there any support services for children under 8 years? We welcome children aged 6 - 7 years in LCK Connected if you feel it is the right space for them. LCK hope to be able to provide additional services for younger children soon. During the trial phase of our support services we identified that younger children need an alternative service to those currently on offer, but that some children age 6-7 years may enjoy LCK Connected. We hope to fundraise to be able to run play therapy sessions for younger children in the future. What safeguarding steps are in place? We take safeguarding seriously. LCK adheres to our safeguarding policy and do our best to screen attendees but parents and caregivers are responsible for the safeguarding of their children and young people under 18 and should remain vigilant. LCK requires a parent or carer present with any child under the age of 16 whilst using our support services. An over view of the steps we take Due diligence in the on boarding of volunteers Website members only Registration & consent of members Manual registration verification by team volunteers Age specific channels Terms Of Use Reminder messages about the rules before posting Ongoing part time moderation Ask our members to report concerns Read our Safeguarding Policy Where can I raise issues or concerns? If you have any ongoing concerns that have not been resolved by a moderator please contact the safeguarding officer. In the first instance; Safeguarding Officer Senior Officer Sarah Priest. spriest@longcovidkids.org Unresolved concerns; Safeguarding Lead LCK CEO Sammie Mcfarland smcfarland@longcovidkids.org Where can I find out more? For general enquires about our support services please email supportservices@longcovidkids.org Read our Safeguarding Policy. Read our Terms and Conditions. I have registered on the website but I keep getting “You don’t have permission to access this page” Once you have registered you will be emailed a form to complete giving further details on how to register. This form needs to be completed before access to the LCK Connected booking area and Chatbox is granted. This email sometimes goes into your spam folder, so check there first. If it isn’t there please email supportservices@longcovidkids.org for assistance. I have completed a form and have only been granted access to one area of the support services website. To allow you the opportunity to post in Chatbox in complete confidence your registration only allows you access to one part of the site. For example if on the registration form you specify the user of the website will be parent and caregiver, you will only be granted access to those areas. To get access for your child they will need to register using a DIFFERENT email specifying the age group they would like access to. Email supportservices@longcovidkids.org for further assistance. I have completed the form and I still cannot access the page Try refreshing your browser and trying again. The page sometimes needs a little patience to load, so do give it a chance. I have registered on the website and have been given access to the wrong area, what can I do? If you have been given access to the incorrect area, please email supportservices@longcovidkids.org with the details of the correct are you would like access to and we will amend it for you. What is Long Covid ? Long Covid is the name for the symptoms that carry on for more than four weeks after someone gets COVID-19. It is a descriptive title given by the people who are living with Long Covid to help explain the difference between initial COVID-19 symptoms and ongoing symptoms. How long does it take to get better from Long Covid? We wish we had the answer to this question, but because Long Covid is so new, we just don’t know yet. We can tell you what we know so far. Many children get better in less than three months Some children take longer to get better. Some children have not recovered yet but have improved. There are also some children who have not seen improvement. So as you can see it is a very tricky question to answer. We have learn't a lot since 2020, and there are lots of ways to reduce symptoms to make them more manageable. Some symptoms can be treated. Your doctor will be able to give you and your family some advice about these. Scientists are working hard to understand Long Covid and to develop treatments which we all hope will make people better. Who gets Long Covid? Both children and grown-ups can experience long-lasting symptoms. Because Long Covid is new, we don’t know why some children experience symptoms that seem to go on and on, and why others don’t. This is one of the things doctors and scientists are working on right now. Who can I talk to? Managing any new situation or change in health can cause worry. It’s okay to cry, feel worried or angry but if these emotions become too difficult to deal with, know that there are people who will want to help you manage these feelings. Share how you feel with a trusted adult. There are lots of people who can offer support. Think about who you can talk to at school or at home. You can talk to one of the health care professionals involved in your care. There are many organisations like ChildLine listed at the bottom of his page. It can also help to talk to people who are a similar age to you who have had a similar experience to you. Lots of children have told our team that they enjoy the free online LCK Connected Zoom HangOut sessions we offer, and they like chatting with the friends they make in ChatBox our online forum. You are not alone. There are people who want to help, including us. “What is the bravest thing you’ve ever said” asked the boy, “Help” said the horse.” Charlie Mackesy Kooth Available as an app or on a desktop, Kooth is for CPY age 10-25 and is free, safe, anonymous support accredited by BACP. The Mix 0808 808 4494 (3pm-12am daily) Various avenues of support such as live chat, discussion boards and helpline for CYP age 10-25. Young Minds Textline. Text YM to 85258 (free from EE, O2, Vodafone, 3, Virgin Mobile, BT Mobile, GiffGaff, Tesco Mobile and Telecom Plus). Provides free, 24/7 text support for young people across the UK experiencing a mental health crisis. All texts are answered by trained volunteers, with support from experienced clinical supervisors. Young Minds Website This is a great website that a child or young person can access with excellent resources. Parents can also access it for ways to help support their children. The Emotional Wellbeing and Mental Health Service (EWMHS) Provides advice and support to children, young people and families who are in need of support with their emotional wellbeing or mental health difficulties. Can I talk to other kids with Long Covid? Yes. Lots of children have told our team that they enjoy the free online Zoom HangOut sessions we offer, and they like chatting with the friends they make in ChatBox. ChatBox is an online space for kids living with Long Covid. Kids between the ages of 8-17 years can chat online, be kids, and support each other. There is a different space for each age group to connect with other kids who are in the same age group and who maybe going through a similar experience. It is a great way to make new friends who ‘get it’. If you are under 16 you will need to ask your parent or caregiver to complete the registration form, if you are over 16 you can complete this for yourself. ChatBox Online Forum Online chat forum for kids living with Long Covid. Separate channels for ages; • Age 8-11 years • Age 12-14 years • Age 15+ years • Parents & caregivers ChatBox members can choose to engage in specific topics and discussions that interest them. Connect with other kids who are the same age, or share similar interests and form supportive friendships. ChatBox can be used in between LCK Connected sessions to nurture relationships and gain support. Find out more LCK Connected LCK Connected offers weekly Zoom HangOuts led by our experienced volunteer team and provides a welcoming session for children from ages 6-17 years, parents and caregivers. Members can actively participate and chat with cameras on, others pop in to say ‘Hello’ at the start and then switch their camera off, hang out, chill and listen. Members often choose to continue discussions, friendships and peer-to-peer support via ChatBox Find out more What if nobody believes me ? Long Covid is new, and everybody is learning. Try to talk to your family or trusted adult about how you are feeling. Try to explain how your symptoms affect you. You may find it helpful to show them the information on this website to help them understand more about Long Covid. Consider reaching out to a trusted adult from your extended family (e.g Aunt, Grandparent) or somebody at school. They might be able to help speak to your family for you or with you. Depending on your age you have different rights to seek support without consent and whether or not this support has to be kept private or confidential. You could phone your GP to seek support and they will assess whether you have the capacity to do this. Can I consent to my own treatment? People aged 16 or over are entitled to consent to their own treatment. This can only be overruled in exceptional circumstances. If you are under the age of 16 you can consent to your own treatment if you’re believed to have enough intelligence, and competence to fully understand what’s involved in your treatment. This is known as being Gillick competent. Can I refuse to have treatment? If you refuse treatment, and that refusal could cause you serious harm, your decision can be overruled by the Court of Protection. This is the legal body that oversees the operation of the Mental Capacity Act (2005). If you have refused treatment your parents may consent for you, but it’s usually thought best to go through the courts in this situation. Do I have a right to keep my treatment confidential? Yes. Article 16 of the UN Convention states that children have a right to privacy. This means that you are entitled to respect for privacy and confidentiality, for example, in getting advice and counselling on health matters, depending on your age and understanding. Breaking confidentiality is done only when it is in the best interest of you or the public, required by law or if you give your consent.

Galeria objawów Long Covid Kids 1/1 Razem silniejsi Families, children and young people share their Long Covid lived experiences to raise awareness and reassure others. Nobody has to feel alone. Join our Support Service for peer-to-peer support. Case Study form and blogs coming soon

Galeria objawów Long Covid Kids July 30, 2021 ​ Delta poses 'severe' risk to mothers-to-be: Covid variant could be bigger danger for pregnant women, scientists warn The Delta variant may pose a greater risk to pregnant women, scientists have warned, as they called on expectant mothers to get vaccinated. More than 99 per cent of pregnant women hospitalised with Covid are unvaccinated and one in ten end up in intensive care, a study found. Researchers from Oxford University described their findings as ‘very concerning’. Button June 30, 2021 ​ Gedling woman speaks out over deciding to get Covid vaccine while pregnant “Due to my job, I had personally seen women severely unwell with Covid-19 with caesarean section kits next to their beds in case the worst happened to them. This was sobering enough for me, alongside knowing that vaccines are given routinely in pregnancy. There has been more than six months of data about the vaccines with no major risks outlined and there have been more than 100,000 women in America who have had the vaccines safely in pregnancy.” Button June 24, 2021 ​ "It's very distressing to watch someone expecting with Covid": Joy and relief as pregnant women receive their vaccines "We know from the national data that of the women who were admitted to hospital with Covid, one in 10 ended up in critical care. The babies were two-to-three times more likely to be delivered prematurely. Sadly there is an increased risk of stillbirth. That risk is small but it's probably doubled if you get Covid. And out of the women admitted to hospital with Covid, one in 150 died. That's what really worries us." Button June 23, 2021 ​ Why I got the Covid vaccine during pregnancy "Prior to Covid and pregnancy, I’d been backpacking around the world and received many of the vaccines currently available from yellow fever, encephalitis, hepatitis, meningitis and everything else I could get. Now, I wish that same freedom for my unborn child... I like to think I’ve given my child the gift of health and to help them feel safe in a complex world, which is the only thing that any parent cares about, once everything else is stripped away." Button June 17, 2021 ​ Preliminary Findings of mRNA Covid-19 Vaccine Safety in Pregnant Persons "Preliminary findings did not show obvious safety signals among pregnant persons who received mRNA Covid-19 vaccines. However, more longitudinal follow-up, including follow-up of large numbers of women vaccinated earlier in pregnancy, is necessary to inform maternal, pregnancy, and infant outcomes." Button May 24, 2021 ​ Why is Covid-19 killing so many pregnant women in India? "Pregnant women, who have weaker immune systems, have been developing widespread scarring of the lungs after getting infected by the virus. “Their lungs looked white as bone on X-rays,” the doctor said. “Their air sacs filled with fluid that had leaked from blood vessels into the lungs.” Button May 13, 2021 ​ Coronavirus Vaccines Protect Pregnant Women, Another Study Suggests "The shots may also have benefits for infants and do not seem to damage the placenta, according to the latest research." Button April 27, 2021 ​ COVID vaccines don’t harm ovaries and neither does virus, Jerusalem doctors find "Taking a coronavirus vaccine won’t harm ovary function, and neither will catching COVID-19, Israeli researchers have concluded in a study that might reassure vaccine hesitaters and recovered patients alike. They studied the ovaries of women undergoing IVF, and saw that there was no difference in function between the women based on whether they were vaccinated or unvaccinated, or on whether they had or hadn’t been infected." Button April 16, 2021 ​ Pregnant women in UK told to have Pfizer or Moderna vaccine "Pregnant women in Britain should get a COVID-19 vaccine made by Pfizer (PFE.N) or Moderna (MRNA.O) because there is more real-world data to show they are safe, the British public body that advises on vaccinations said on Friday. The Joint Committee on Vaccination and Immunisation (JCVI) said around 90,000 pregnant women had been vaccinated in the United States, mainly with the two American vaccines, without any safety concerns being raised." Button February 27, 2021 ​ Fetus infected with COVID-19 dies in womb, in 2nd such case in Israel "An Israeli hospital said on Saturday that a fetus stillborn from a woman infected with the coronavirus was also found to be carrying the virus. It was the second such reported instance in Israel." Button February 16, 2021 ​ Hospital says ‘high probability’ fetus died of virus, in 1st such case in Israel "An Israeli hospital said on Tuesday that a fetus stillborn from a woman infected with the coronavirus was also found to be carrying the virus, having been infected via the placenta. It was the first such reported instance in Israel." Button September 15, 2020 ​ Stillbirth rate rises dramatically during pandemic "A slew of studies from around the world has reported a disturbing trend: since the coronavirus pandemic started, there has been a significant rise in the proportion of pregnancies ending in stillbirths, in which babies die in the womb. Researchers say that in some countries, pregnant women have received less care than they need because of lockdown restrictions and disruptions to health care. As a result, complications that can lead to stillbirths were probably missed, they say." Button May 9, 2020 ​ Severe maternal morbidity and mortality associated with COVID-19: The risk should not be downplayed "Maternal deaths due to COVID-19 are happening not only in low-income countries with restricted resources and poorer healthcare systems, but also in highly developed countries with excellent resources and healthcare facilities and traditionally very low maternal mortality ratios. Furthermore, it is very likely that maternal deaths are under-reported." Button July 1, 2021 ​ Short-term outcome of pregnant women vaccinated by BNT162b2 mRNA COVID-19 vaccine "As shown by the adverse effect profile and short-term obstetric and neonatal outcomes, no safety signals appeared among pregnant women who were vaccinated by BNT162b2vaccine at all stages of pregnancy. The vaccine is effective in generating humoral immune response in pregnant women, although IgG levels were lower than observed in non-pregnant women." Button June 27, 2021 ​ Pregnant women can get vaccinated with Sputnik V if benefits outweigh the risks "On Friday, Russian Health Minister Mikhail Murashko informed that taking into account the positive results of the pre-clinical safety trials of the vaccine and the accumulated data on its safety and efficiency during the post-registration trials, experts have decided to allow the use of Sputnik V among pregnant women. The minister explained that this allows pregnant women who have a high risk of developing severe symptoms of the disease to get vaccinated." Button June 23, 2021 ​ NIH begins study of COVID-19 vaccination during pregnancy and postpartum "A new observational study has begun to evaluate the immune responses generated by COVID-19 vaccines administered to pregnant or postpartum people. Researchers will measure the development and durability of antibodies against SARS-CoV-2, the virus that causes COVID-19, in people vaccinated during pregnancy or the first two postpartum months." Button June 22, 2021 ​ Pregnant German women seek vaccination "Despite pregnant women being more likely to die from COVID-19, there is currently no nationwide recommendation to vaccinate them in Germany. But the state of Saxony has pushed ahead on its own. Now, many women are traveling there to get their shot." Button June 9, 2021 ​ Research now backs routinely offering pregnant women the mRNA COVID-19 vaccine "New Zealand and Australia will now routinely offer the Pfizer COVID-19 vaccine to women at any stage of pregnancy, following an update of vaccination advice. This comes as research suggests the risk of severe outcomes from infection is significantly higher for pregnant women compared to the general population. At the same time, data from pregnant women who have already been vaccinated around the world have shown no safety concerns associated with COVID-19 vaccines." Button May 19, 2021 ​ Maternal and perinatal outcomes of pregnant women with SARS-CoV-2 infection at the time of birth in England: national cohort study "SARS-CoV-2 infection at the time of birth is associated with higher rates of fetal death, preterm birth, preeclampsia and emergency Cesarean delivery. There were no additional adverse neonatal outcomes, other than those related to preterm delivery. Pregnant women should be counseled regarding risks of SARS-COV-2 infection and should be considered a priority for vaccination." Button May 13, 2021 ​ Immunogenicity of COVID-19 mRNA Vaccines in Pregnant and Lactating Women "In this exploratory analysis of a convenience sample, receipt of a COVID-19 mRNA vaccine was immunogenic in pregnant women, and vaccine-elicited antibodies were transported to infant cord blood and breast milk. Pregnant and nonpregnant women who were vaccinated developed cross-reactive antibody responses and T-cell responses against SARS-CoV-2 variants of concern." Button April 22, 2021 ​ Clear link emerges between COVID-19 and pregnancy complications "Those with COVID-19 had a 76% greater chance of pregnancy-induced high blood pressure, known as preeclampsia or eclampsia. They were three times as likely to have a severe infection and five times as likely to be admitted to an intensive care unit, Papageorghiou’s team reports today in JAMA Pediatrics. Eleven women with COVID-19 died, compared with just one woman in the uninfected group." Button April 16, 2021 ​ Brazil asks women to delay pregnancy over new coronavirus variant fears "If it’s possible, delay pregnancy a little until a better moment," Health Ministry official Raphael Parente said during a news conference on Friday. He said the recommendation was partly due to the stress on the health system but also due to the more easily transmissible Brazilian variant known as P.1. "The clinical experience of specialists shows that this new variant acts more aggressively in pregnant women," Parente said. Previously, COVID-19 cases during pregnancy were focused on the final trimester and birth, whereas lately there have been more serious cases in the second and occasionally first trimester, he said." Button February 23, 2021 ​ Pregnancy and neonatal outcomes of COVID-19: coreporting of common outcomes from PAN-COVID and AAP-SONPM registries "Preterm delivery affected a higher proportion of women than expected based on historical and contemporaneous national data... Although maternal death was uncommon, the rate was higher than expected based on UK and USA population data, which is likely explained by underascertainment of women affected by milder or asymptomatic infection in pregnancy in the PAN-COVID study, although not in the AAP-SONPM study." Button November 6, 2020 ​ Birth and Infant Outcomes Following Laboratory-Confirmed SARS-CoV-2 Infection in Pregnancy — SET-NET, 16 Jurisdictions, March 29–October 14, 2020 "Among 3,912 infants with known gestational age born to women with SARS-CoV-2 infection, 12.9% were preterm (<37 weeks), higher than a national estimate of 10.2%. Among 610 (21.3%) infants with testing results, 2.6% had positive SARS-CoV-2 results, primarily those born to women with infection at delivery." Button August 4, 2020 ​ Why pregnant women face special risks from COVID-19 "Pregnancy does appear to make women’s bodies more vulnerable to severe COVID-19, the disease caused by SARS-CoV-2. That’s partly because of pregnant women’s uniquely adjusted immune systems, and partly because the coronavirus’ points of attack—the lungs and the cardiovascular system—are already stressed in pregnancy." Button May 9, 2020 ​ Public Health Agency of Sweden's Brief Report: Pregnant and postpartum women with severe acute respiratory syndrome coronavirus 2 infection in intensive care in Sweden "The results indicate that the risk of being admitted to ICU may be higher in pregnant and postpartum women with laboratory-confirmed SARS-CoV-2 in Sweden, compared with non-pregnant women of similar age." Button July 1, 2021 ​ Pregnant women in England denied mental health help because of Covid "Thousands of pregnant women in England were denied vital help for their mental health because of the pandemic, analysis from leading psychiatrists shows. In 2020-21, 47,000 were expected to access perinatal mental health services to help with conditions such as anxiety and depression during or after giving birth, but only 31,261 managed to get help in the most recent data for the 2020 calendar year only, according to analysis from the Royal College of Psychiatrists." Button June 25, 2021 ​ Inflammatory biomarkers in pregnant women with COVID-19: a retrospective cohort study "Our findings are in agreement with the results of previous studies highlighting how COVID-19 patients are characterized by a relevant systemic inflammation, which acts as a driver of morbidity and mortality. Particularly, lymphocytopenia, a high NLR and high values of CRP had all been linked with disease severity or mortality. Our work confirms that these variables show abnormal values also in obstetric patients and mirrors the course of the disease." Button June 23, 2021 ​ COVID vaccines and breastfeeding: what the data say "The vaccines do not pass through breastmilk, but antibodies do — providing hope that breastfed babies might have some level of protection." Button June 18, 2021 ​ COVID-19: Pregnant women and their unborn babies dying in Brazil as deaths set to pass 500k mark "Researchers say the P1 variant has started infecting and killing pregnant women and their unborn children in startling numbers... Currently 42 pregnant women die every week from COVID-19; many more women are being intubated and their premature children delivered by caesarean section without consultation with obstetricians, according to medical researchers at the Brazilian Obstetric Observatory." Button May 27, 2021 ​ Covid-19 Is Killing Hundreds of Pregnant Women and Babies in Brazil "At least 579 babies under the age of 1 have died from Covid-19 in Brazil since the start of the pandemic. Hundreds of babies are being delivered prematurely to save their sick mothers. Others perish in the womb, starved of oxygen as their mothers gasp for air, or contract the disease and die in the first months of life." Button May 17, 2021 ​ First UK COVID-19 vaccine study for pregnant women launches "The first COVID-19 vaccine study in the UK to recruit pregnant women has been launched across eleven National Institute of Health Research sites. The phase 2/3 study aims to further understand the safety, tolerability and immunogenicity of the Pfizer-BioNTech COVID-19 vaccine in healthy pregnant women, with approximately 235 volunteers involved throughout the UK." Button May 11, 2021 ​ Severe Acute Respiratory Syndrome Coronavirus 2 (SARS-CoV-2) Vaccination in Pregnancy "In our cohort of vaccinated pregnant patients, there was no observed increase in the incidence of findings characteristic of SARS-CoV-2 infection in pregnancy and no evidence of vaccine-triggered breakdown in maternal immunologic tolerance of the fetus. Although limited by population differences between vaccinated and unvaccinated patients, these findings add to the growing literature supporting the safety of SARS-CoV-2 vaccination in pregnancy." Button April 22, 2021 ​ Maternal and Neonatal Morbidity and Mortality Among Pregnant Women With and Without COVID-19 Infection "In this multinational cohort study of 2130 pregnant women in 18 countries, women with COVID-19 diagnosis were at increased risk of a composite maternal morbidity and mortality index. Newborns of women with COVID-19 diagnosis had significantly higher severe neonatal morbidity index and severe perinatal morbidity and mortality index compared with newborns of women without COVID-19 diagnosis." Button March 16, 2021 ​ Sisters, aged 23 and 31, die of COVID 10 days apart after giving birth "A 23-year-old woman died Monday due to complications from the coronavirus, three weeks after giving birth and less than two weeks after her sister, 31, died of the same cause after her first baby was born... Army Radio reported Tuesday that a mother had lost her unborn twins due to the coronavirus. She was said to be hospitalized in moderate condition, and had apparently not been vaccinated. The report said 40 pregnant women are currently hospitalized due to complications of the virus, none of whom are vaccinated." Button February 22, 2021 ​ Death of mother, fetus highlights sharp rise in COVID infections among pregnant "According to data published by Israeli television networks, recent months have seen a significant increase in pregnant women infected by the virus, something officials have blamed on the more aggressive UK variant... Channel 13 reported that there are currently 50 pregnant women hospitalized, with 19 in serious condition and 8 in critical condition. None of them have been vaccinated." Button October 7, 2020 ​ COVID-19 Has a Prolonged Effect for Many During Pregnancy "Symptoms for pregnant women with COVID-19 can be prolonged, lasting two months or longer for a quarter of the women who participated in a national study led by UC San Francisco and UCLA." Button July 14, 2020 ​ Transplacental transmission of SARS-CoV-2 infection "The transmission is confirmed by comprehensive virological and pathological investigations. In detail, SARS-CoV-2 causes: (1) maternal viremia, (2) placental infection demonstrated by immunohistochemistry and very high viral load; placental inflammation, as shown by histological examination and immunohistochemistry, and (3) neonatal viremia following placental infection. The neonate is studied clinically, through imaging, and followed up. The neonate presented with neurological manifestations, similar to those described in adult patients.." Button

Recovery Recovering from any post-viral illness can take time. While it is natural to want to 'get back to normal after being unwell, 'pushing through' is ill-advised, and may prolong recovery time in some children. More information can be found in our blog posts 'Cautious Tortoise ' and 'Pacing Penguins '. ​ NHS England Long Covid Hubs On the 15th of June 2021, NHS England announced 15 Long Covid Hubs for children struggling to recover from COVID-19 infection. The hubs are designed to help assess & coordinate care of children and young people. They are not funded to provide treatment. ​ Any child with symptoms lasting longer than 4 weeks can be referred to the local paediatric team by the GP. If the local team are unable to support, they can refer the child to the nearest Long Covid Hub. Scotland, Ireland and Wales do not yet have any Long Covid services. Links & Downloads Supporting Children Living with Long Covid to Manage Their Energy With Pacing Penguins DOWNLOAD Long Covid Recovery for Children DOWNLOAD Back to School - Tips for Teachers DOWNLOAD NHS Paediatric Long Covid Hubs DOWNLOAD Caring for People with Post-COVID Conditions VIEW LINK Long Covid Physio VIEW LINK THIS IS A BRAND NEW PAGE AND CURRENTLY UNDER CONSTRUCTION

WSPARCIE Facebook group list Register for support KTO MOŻE DOŁĄCZĆ DO NASZEGO GRUPA? Rodzice i opiekunowie, którzy; Masz dziecko, które chorowało na COVID-19. Chcesz nawiązać kontakt z innymi rodzinami, które przeżywają to samo. Są pasjonatami zwiększania świadomości. Chcieliby podzielić się swoją historią. Trudno jest znaleźć pomoc. Chcieliby wesprzeć badania nad Long Covid u dzieci. Wcześniejsze Facebook Group Peer support for families of children & and young people living with Long Covid and related illnesses. We understand the challenge of diagnosis, do not need to have a diagnosis to join. Learn more LCK Connected Connect with other kids going through Long Covid years, and the parents and caregivers who care for them. Site registration & consent required. Learn more LCK Discord Connect with other teens going through Long Covid. 13+ Learn more Register to Join LCK Discord Dołącz do Long Covid Kids Advocay & Support Join LCK Scotland Facebook Group Join LCK Republic of Ireland Facebook Group Join LCK Wales Facebook Group Long Covid is a global problem. We are pleased to have lead representatives in countries around the world offering support to members. Our main Facebook group is international and welcomes everyone. Join LCK USA Facebook Group Join LCK Canada Facebook Group Join LCK New Zealand Facebook Group Join LCK Austria Facebook Group Join LCK Greece Facebook Group Join LCK Italia Facebook Group Are PIMS-TS and MIS-C the same thing? Yes. In the UK, PIMS-TS stands for Paediatric Inflammatory Multisystem Syndrome, temporally associated with SARS-CoV-2. It is often shortened to PIMS. In the US and internationally it is referred to as Multisystem Inflammatory Syndrome in Children (MIS-C). PIMS-TS is a treatable condition requiring prompt medical treatment. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What is PIMS-TS? PIMS-TS is a new systemic inflammatory disease that mainly affects children and young people. The syndrome is caused by a SARS-CoV-2 infection leading to inflammation throughout the body. Inflammation is a normal response from the body’s immune system to fight infection. However, sometimes the immune system can go into overdrive. In PIMS the inflammation is excessive and damaging to the body. For a disease to be classed as rare it affects less than 1 in 2000. Since March 2020 there have been almost 3000 cases of PIMS-TS in the UK alone. PIMS-TS is a treatable condition requiring prompt medical treatment. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What are the symptoms of PIMS-TS? All children with PIMS-TS will have a fever >38 degrees C which persists for 24 hours or longer and may not reduce with over-the-counter medications. There is a wide range of other symptoms that children might have, including: Rash Tiredness, sleepiness or fatigue Muscle pain Tummy pain or cramps Red and cracked lips, often swollen Strawberry tongue Swollen fingers, toes or hands and feet, often red Cold hands and feet Peeling skin on hands and feet Headache Red bloodshot eyes Muscle aches and pains Diarrhoea and vomiting Racing heart Dizziness Swollen neck glands Unexplained irritability PIMS-TS is commonly misdiagnosed because: 1. It is a new syndrome 2. It is not commonly seen by doctors 3. Because symptoms are similar to other childhood conditions. 4. Children who experience PIMS-TS may have had an asymptomatic infection 5. Children may not have been previously unwell with COVID-19 6. Children can seem to recover from the acute infection and then develop PIMS-TS 7. The symptoms of PIMS-TS generally don’t appear until 4-6 weeks after SARS-CoV-2 infection. Because PIMS tends to develop after the infectious stage, a PCR test is unlikely to be positive for SARS-CoV-2 at this time. Tell your medical professional if your child has had a positive COVID-19 test or is likely to have been exposed to Covid-19. As with Long Covid, a positive COVID-19 test is not essential for diagnosis. However, knowledge of exposure to Covid-19 supports the diagnosis. We don’t yet know enough about how frequently children who get PIM-TS go on to experience Long Covid. Long Covid Kids have been highlighting in official meetings that non-hospitalised presentations consistent with PIMS have been seen in our support services since 2020. PIMS-TS is a treatable condition requiring prompt medical treatment. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What should I do if my child is unwell with the symptoms of PIMS-TS? PIMS-TS is a treatable condition requiring prompt medical treatment. If you think that your child may have PIMS-TS or you are concerned, call your GP or NHS 111 (UK) immediately. If your child develops chest pain, call Emergency Services on 999 (UK) Whilst most children won’t be seriously unwell with SARS-CoV-2 infection, some children may develop PIMS-TS. The most important thing to remember is that any child who is seriously unwell needs to be treated quickly – whatever the illness. There aren't any specific tests for PIMS. Doctors will consider the information available and rule out other more common conditions that cause similar symptoms – including Kawasaki Disease, Sepsis and Toxic Shock Syndrome. Finally, the doctor will be able to work out what treatment is best for your child. If your child is not diagnosed with PIMS and continues to have symptoms consistent with PIMS please get a second opinion. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians Are Black or Asian children more likely to be affected? Children from all ethnic minority backgrounds are reported to be affected by PIMS. There have been more children affected by PIMS who are from Black and Asian backgrounds, but it is not yet clear why. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians What if my child has not had COVID-19? Children can experience asymptomatic illness with COVID-19. This means a child may have had COVID-19 without showing any symptoms. Seek medical advice if your child has the symptoms of PIMS even if you don't think they have previously had COVID-19. The doctors will rule out other more common conditions that cause similar symptoms – this includes things like Kawasaki Disease, Sepsis and Toxic Shock Syndrome. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians How is PIMS diagnosed and treated? Doctors check how well various organs are working and perform blood tests to look at the levels of inflammation in the body. These results together with symptoms guide the doctors to a diagnosis of PIMS. PIMS can be treated with a combination of medicines to reduce inflammation in the body and temporarily “switch off” the hyperactive immune system • Intravenous immunoglobulin (IVIG). • Corticosteroids • Anti-clotting medicines Aspirin and Dalteparin /Clexane) • Biologic medicines (Anakinra and Tocilizumab) We don’t yet know enough about how frequently children who get PIM-TS go on to experience Long Covid. Long Covid Kids have been highlighting in official meetings that non-hospitalised presentations consistent with PIMS have been seen in their support services since 2020. Treatment must be prescribed by a doctor. More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians Are children hospitalised with PIMS? For a disease to be classed as rare it affects less than 1 in 2000. Since March 2020 there have been almost 3000 cases of PIMS-TS in the UK alone. Find more information in the Long Covid Kids Child Specific COVID-19 Infection Analysis Blog Updated March 2021 More information from the Evelina Children's Hospital for parents More information from the Evelina Children's Hospital for clinicians More information from the CDC for parents More information from the CDC for clinicians Do children die from PIMS? Until December 2021 we were unable to find any public data. In December 2021, 1 child PIMS-TS death was reported. Updated Feb 2022 What follow up care should be offered to a child recovering from PIMS? According to the American Academy of Paediatrics (AAPS) children diagnosed with PIMS should receive; Outpatient paediatric cardiology follow-up starting 1 to 2 weeks after discharge from the hospital. Timing should be determined in consultation with a pediatric cardiologist Children with a myocardial injury must have cardiology directed restriction and/or release for activities. Children who receive steroid therapy or treatment with biologics should receive follow-ups with the paediatric rheumatologist after discharge. Primary care follow-up is recommended for all patients. Children and young people usually recover well from PIMS. Some children and young people may develop Long Covid. Should patients with a history of PIMS receive the COVID-19 vaccine? According to the AAP in the USA children with a history of PIMS / MISC should consider delaying vaccination until after they have recovered from illness (including a return to normal cardiac function) and for at least 90 days following their diagnosis of PIMS /MIS-C. Currently, there are limited data about the safety and efficacy of the COVID-19 vaccine in children with a history of PIMS / MISC. It is recommended that paediatricians and families should participate in shared decision making and consider the risks and benefits of COVID-19 vaccination for each patient. The CDC offers additional guidance. Children who have received monoclonal antibodies or convalescent plasma as part of their treatment should wait at least 90 days before receiving the COVID-19 vaccine. What is Long Covid? Long Covid is the term given to the ongoing signs and symptoms caused by SARS-CoV-2 infection. It is generally used to indicate symptoms and clinical signs that remain unresolved for four weeks or longer. Symptoms of Long Covid can also appear some time after an asymptomatic infection. Long Covid was coined by patients who challenged the early COVID-19 guidelines that stated people recovered from mild cases within two weeks. It is called other terms around the world such as Post-COVID-19, Post Covid Condition, and Post-Acute Sequelae of COVID-19 (PASC). Long Covid was first recognised by patients at the beginning of the pandemic when they noticed that symptoms such as those of pneumonia, chilblain like sores and many others were not resolving with time. This history has been peer-reviewed and published Research conducted by both patients and clinical scientists has since proven that the prolonged signs and symptoms of SARS-CoV-2 infection can include damage and dysfunction to all body systems and organs. Symptoms range from chronic loss of smell and fluctuating rashes to neurological and neuropsychiatric symptoms. Some children living with Long Covid have also eventually received a new diagnosis of conditions such as Paediatric Acute-Onset Neuropsychiatric Syndrome (PANs), narcolepsy and organ damage. A booklet published by the National Institute of Health and Care Excellence (NICE), Scottish Intercollegiate Guidelines Network (SIGN) and Royal college of General Practitioners may help explain more. There is no specific test or biomarker for Long Covid and diagnosis is generally by exclusion of other illnesses and syndromes. Some specific tests like a SPECT scan, however, can reveal covid related damage, such as damage to the small vessels in the lung. Many people living with the disease were previously fit and healthy. Scientists are currently working hard to discover biomarkers for Long Covid and there are a number of promising studies nearing completion. NICE produced a rapid guideline on the management of Long Covid in November 2021. They described Long Covid as the presence of signs and symptoms that develop during or following an infection consistent with COVID-19 which continue for 12-weeks or more and are not explained by an alternative diagnosis. This includes both ongoing symptomatic COVID-19 (from 4 to 12 weeks) and long term consequences of COVID-19 (12-weeks or more). Long Covid Kids is referenced as a resource in this document. See Long Covid Physio for more information. How much do we understand about Long Covid? The National Institute for Health Research (NIHR) Second Themed Review on Long Covid stated there may be grounds to understand Long Covid as up to 4 syndromes with different underlying causes and treatment needs. These could include: Long Term Organ Damage Post Viral Syndrome Post Intensive Care Unit (ICU) Syndrome Potentially an entirely novel syndrome separate from the others that could more specifically and uniquely be identified as "Long Covid". It is important to note that these long-term effects on health may coexist in the same person. A note on Post ICU syndrome: Post ICU syndrome is a well known phenomenon in medicine and points to the long-term impact of the intensive care experience on a patient. Doctors and researchers must distinguish the effects of Post ICU syndrome from the damage caused directly by Covid. They both can persist even after hospital discharge. Most children do not need ICU treatment for Covid and related conditions, but this might happen in some cases, for example, with PIMS/ MIS-C. These syndromes are consistent with the experiences shared in Long Covid Kids Support Services. It's going to take years to understand the full impact of SARS-CoV-2 but there are many studies underway seeking to understand and track Long Covid in the UK and globally. Long Covid Kids are proud to be involved in coproducing research and representing lived experiences. Long Covid Kids and others who are speaking up for children are also working hard to ensure transparency of data. As it stands the prevalence of Long Covid is not counted in UK statistics nor do we know the outcome of the child Covid-19 hospital admissions each month. Long term friend to Long Covid Kids, Dr Elaine Maxwell, has recently called for a National Sentinel Audit of Long Covid to obtain standardised data. We do however, have the benefit of our world renowned Office for National Statistics estimates and hope that this vital reporting service will continue. Who can get Long Covid? Anyone, of any age can get Long Covid regardless of the severity of COVID-19 infection. Asymptomatic infection can lead to Long Covid Mild infection can lead to Long Covid Severe infection can lead to Long Covid Long Covid is more often found in non-hospitalised people. Are some people more 'at risk' of getting Long Covid? We don't yet know which children will develop Long Covid. However, early data indicates that those who fall into the following groups appear to have increased risk factors; Female Being young, fit, and healthy Atopy - eczema, asthma, hay fever. Allergy to animals / cats Previous Post Viral Fatigue Ehlers-Danlos syndromes Fibromyalgia Irritable bowel syndrome We need more research to answer this question. Most people recover well from Sars-CoV-2 infection. Anyone who gets COVID-19 may develop symptoms of Long Covid. When do the symptoms of Long Covid start? New and ongoing symptoms lasting more than 4 weeks after COVID-19 infection could be Long Covid. Long Covid most often occurs at around 4-6 weeks after initial COVID-19 infection but can immediately follow the acute phase of COVID-19 infection, or develop at a later date too. It is not uncommon for children to have a gap between COVID-19 infection and Long Covid. Due to the delay in onset of the symptoms of Long Covid we recommend giving children time to convalesce after COVID-19 infection and be cautious about rushing back to activities, including education. It is well documented by people with lived experience, and from other post-viral conditions, that activity can exacerbate symptoms significantly. It is wise to take a cautious approach. For more guidance on recovery please see our support resources developed by people living with Long Covid for families. Cautious Tortoise - #LessHareMoreTortoise Pacing Penguins - #PacingPenguins Tipis for Teachers - #Tips4Teachers How common is Long Covid in children? The NIHR funded paediatric study into Long Covid is called the Clock Study. Their initial findings published in August 2021 showed that 14% of children can go on to develop Long Covid. This means about 2-4 children in each classroom could statistically develop Long Covid. How much impact can Long Covid have on daily life? Long Covid can significantly impact the daily life of children and young people. At the start of 2021 LCK conducted a study of our members which is published as a pre-print. This bar chart shows the effect of infection on children as reported by their families. Some children have one or two symptoms that can impact their daily life occasionally. Some children are living with chronic and disabling symptoms that significantly impact their daily life a lot. Some children have life-altering symptoms that significantly impact their daily life a lot. This bar chart shows some of the specific ways that families reported their children were affected. Physical Activity "Overall, we found that most children had worse activity levels than before infection, since, at the time of the survey, 21.2% were currently unable to enjoy any activity and 30.2% enjoyed the occasional activity but usually had an increase of symptoms after" Mental Health "Parents reported a wide range of neurocognitive symptoms, including lack of concentration, difficulty processing/remembering information or understanding instruction, short term memory issues and struggles to find the right words" Our study is representative of the experiences of children living with Long Covid and evidences the need for further research into the impact of COVID-19 on children. Does my child need to have a confirmed positve COVID-19 or antibody test to receive a diagnosis of Long Covid? No a doctor can make a clinical diagnosis without evidence of a confirmed COVID-19 test. WHO Clinical Case Definition A negative antibody test should not be used to exclude Long Covid as a diagnosis. Research shows that 36% of people living with Long Covid don't seroconvert and women are 4x more likely to seroconvert. This means people living with Long Covid may not develop antibodies. When can my child receive support for their symptoms? In the UK any child that has symptoms of COVID-19 for more than 4 weeks is eligible for a referral to a NHS Long Covid Hub. To obtain an appointment a GP must refer children to the local paediatric team. If the local team is unable to offer support children can be referred to the nearest Long Covid Hub. You do not have to live in the same area as the hub to receive a referral. Find a hub. ​ How long will it take for my child to get better? We don't know how long it will take for each child to get better from Long Covid. Reports of experiences from families vary. Some studies report that children get better between 3 - 6 months. ​ Many children in our support group have been ill since March 2020 and continue to experience relapsing and remitting symptoms that significantly impact dailly life. This means their symptoms can come and go, and can mild or severe. Some children have been ill since March and report to feel '"85% recovered" if they follow their individualised health regimes, including Pacing. See child specific guidance in Pacing Penguins. ​ It is not uncommon to have a period of apparent recovery and then develop symptoms again 6 months later. Some families report new symptoms over a year after infection. It is useful to remember that recovery isn't linear. This means that the path to recovery isn't a straight line. For most people it is very wiggly. Symptoms can increase and decrease in serverity. This means symptoms may come and go and they may sometimes be better, and sometimes be worse. What are the symptoms of acute COVID-19 infection in a child or teenager? Like adults, children can have an asymptomatic (displaying no symptoms), or symptomatic acute COVID-19 infection. A comprehensive list of COVID-19 symptoms can be found on the CDC website. The NHS updated its symptoms list in April 2022 Long Covid Kids have been calling for an improved COVID-19 symptoms list since, winter 2020, from the NHS and Government websites because the ‘classic’ three symptoms of cough, loss/change of smell/taste, and fever do not appear to pick up early infections in children. A survey of members in our support group showed that children often present with: Rashes Fever Sore Throat Headaches Nausea Emotional Dependency Mood changes Diarrhoea Tummy Pain Cold Like Symptoms Since Omicron children coming through our support services can also report: Pain Bloating Joint Pain We are deeply concerned that free testing has been withdrawn. Accessing ongoing support without a positive test can be more challenging and we advise getting a PCR or LFT test if possible. Please seek medical attention whenever your child is unwell. I think my child or teenager has COVID-19, when should I get a test?" Get a test immediately if you can. The following info was added before free. testing was withdrawn in the UK. We stand by this recommendation but recognise that it may not be possible to get a test. Please BOOK a COVID-19 PCR test immediately if you suspect COVID-19 infection. Any sign of being unwell in a child could potentially be a COVID-19 infection. Please see the FAQ above on symptoms for more information on the typical symptoms children may present with. Children often present with different symptoms to adults, listen to your gut instinct and protect your community. You know your child best. A confirmed positive COVID-19 test will make it easier to access medical support for your child should they go on to develop Long Covid and help to accurately record the number of child COVID-19 cases. For moral, emotional, or practical support please join our support services where you will find a wide range of experiences from families around the world. Does it matter if I don’t get my child tested? In short, Yes. Register any positive result Not only does it make the numbers of child COVID-19 cases appear lower if you don’t test, but parents and carers report it is harder to get ongoing medical support, if needed, without a positive test result. Without a test, you may find it difficult to get the correct diagnosis, and you may get misdiagnosed. The government should use the data to inform their decision-making. My child has passed the isolation stage but still has symptoms, do they still need to isolate?" We are not qualified to advise. When Test and Trace contact you they should advise on the dates for isolation (usually a period of 10 days from symptoms or positive test) and on the circumstances under which your child should remain isolated. If they don’t, do feel free to ask, you can phone 119 if you have any queries. However, many children with Long Covid have had ongoing symptoms for many months (some have been struggling since early 2020) and they are not in isolation and not considered to be infectious. If your child has ongoing symptoms past the initial isolation stage do contact your GP for further advice and guidance. Can my child get COVID-19 again? Can you get COVID-19 more than once? My child has COVID-19, can the rest of the household get reinfected?" Yes, there is growing evidence that anyone can get reinfected with COVID-19, even after vaccination. This is particularly the case as the virus develops new variants. There are multiple reports in our support services of reinfection, with some reports of up to 4 confirmed infections. Some children have antibodies after initial infection, others do not. Further research is required to understand more. Recent research shows that antibodies wane at 6-8 months. Where possible isolate any positive cases away from the rest of the household and particularly those who are clinically vulnerable although we recognise that this is not easy with very young children. Other mitigations you may consider are using masks, improving ventilation in the home by opening windows, hand washing, and wiping down frequent contact surfaces such as light switches, door handles, and the bathroom. Make sure to flush the toilet with the seat down. Updated April 2022 We now have reports that some children who did not develop Long Covid after their 1st COVID-19 infection, have developed Long Covid with a 2nd or 3rd infection. Children who have Long Covid, and are reinfected report a mix of experiences, some experience no change in symptoms, others experience significant relapse. PIMS-TS Please see What is PIMS for more detail. Paediatric inflammatory multisystem syndrome temporally associated with SARS-CoV-2 (PIMS-TS) is also known As Multisystem inflammatory syndrome in children (MIS-C). It is often referred to as PIMS-TS or PIMS for short. PIMS is a new condition triggered by a SARS-CoV-2 infection and isn't common. It can be detected early and treated successfully. All children with PIMS will have a fever, which persists over several days. There is a wide range of other symptoms that children might have too. A few of these include tummy pain, diarrhoea, vomiting, rash, cold hands and feet and red eyes. These symptoms can also be found in other illnesses. The most important thing is to remember that any child who is seriously unwell needs to be treated quickly – whatever the illness. If the child has a temperature of 38⁰ or higher, cold hands and feet and is sleepy, call your GP or 111. If symptoms persist and you have not been able to speak to either a GP or 111, take your child to the nearest A&E. If your child doesn’t have these signs of being seriously unwell but you are still concerned, talk to your GP. My child is experiencing sudden onset of mental ill health symptoms such as Obsessive Compulsive Disorder, Anxiety or Tics or Hallucinations. Is this linked to COVID-19? What is PANS/PANDAS?" Some of these symptoms can be a linked to fever or the post viral condition however this could be a neuropsychiatric condition. PANS and PANDAS are closely associated with infections and viruses. Both the initial onset and subsequent exacerbations are usually incited by a variety of childhood infections. From: PANS PANDAS UK PANS (Paediatric Acute-onset Neuropsychiatric Syndrome) PANS is a neuropsychiatric condition which is triggered by a misdirected immune response which results in an inflammation of a child's brain. ​PANS is a clinical diagnosis and there is no specific test which will prove or disprove the condition. In order for a diagnosis to be made, presentation of the following symptoms must occur: PANS Diagnostic Criteria ​An abrupt, acute, dramatic onset (usually within 24-48 hours) of obsessive compulsive disorder (OCD)* or severely restricted food intake** along with two or more of the following symptoms which are not better explained by a known neurologic or medical disorder. ​Anxiety (heightened anxiety, separation anxiety, irrational fears, panic episodes) Tics Emotional lability and/or Depression Irritability, Aggression, and/or Severely Oppositional Behaviours Behavioural (Developmental) Regression (increase in temper tantrums, loss of age-appropriate language, clingy behaviour not related to anxiety). Sudden Deterioration in School Performance (due to difficulties with memory, concentration, hyperactivity, impulsivity, new deficits of visuospatial skills) Motor or Sensory Abnormalities (dysgraphia, clumsiness, tics, new sensory sensitivities to light, noise, smell, taste or texture). Insomnia and/or Sleep disturbances Enuresis and/or Urinary frequency Whilst not part of the diagnostic criteria, in approximately 25% of cases there have been reports of Psychosis and/or Hallucinations PANDAS (Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) ​PANDAS is a subset of PANS. Similarly, it is a neuropsychiatric condition which is triggered by a misdirected immune response to a Streptococcal infection which results in an inflammation of a child's brain. PANDAS Diagnostic Criteria ​Usually starting with an acute onset of obsessive compulsive disorder and/or tics, particularly multiple, complex or unusual tics. PANDAS symptoms can then appear to wax and wane with the child experiencing flares periodically, following illness or periods of stress. The child is usually between the ages of 3 and puberty when first symptoms occur and usually appear following a streptococcal infection such as Sinusitus, Ear infections or Scarlet Fever. In some cases children can carry the streptococcus bacteria without showing signs of illness. Whilst it is not a diagnostic requirement, in addition to OCD* and/or tics, children may also experience co-morbid symptoms similar to those seen in PANS.​ * OCD may include any of the following: Contamination obsessions and compulsions Obsessions that harm will come to others and/or related compulsions Sexual or religious obsessions Repeating compulsions Symmetry and exactness obsessions Ordering/arranging compulsions Counting compulsions Checking obsessions or compulsions Excessive reassurance seeking Need to touch, tap or rub Intrusive images, words, music or nonsense sounds Ritualised eating behaviours​ ** Severely Restricted food intake may be related to contamination fears, obsessional fears of choking, or other obsessional fears including a new obsession with body image or weight. ​ Make an appointment with your GP to discuss your concerns. Your GP may not be aware of PANS/PANDAS so do direct them to https://www.panspandasuk.org/for-medical-professionals and work together to determine what treatment to implement. Where can I find out more about COVID-19 Vaccines for children and young people? Please see The Royal College of Paediatrics and Child Health for information on vaccines. Information about the vaccine, its safety and side effects has been published by the UK Health Security Agency. Vaccination is not thought to eliminate the risk of Long Covid but early evidence does show that it may reduce risk. How can I reduce risk? Avoiding infection is the only known way to avoid Long Covid. LCK recommend following the advice of the World Health Organisation who have a specific page for young people. Layers of mitigation can help reduce risk of infection. Distancing Mask Wearing Hygiene Ventilation & Fresh Air Vaccinations Isolate when ill Videos Understand more about transmission. Find a mask that fits your face. Schools Support your school to encourage any children with any symptoms to stay home. This simple practice can help schools stay open and offer in person learning. Schools can offer hybrid learning options to maintain access to education for children and young people well enough to continue education at home. What support services do LCK offer? Long Covid Kids offer three online services. Site membership, registration and consent are required. We take safeguarding seriously. LCK Connected Guided Zoom Hang Outs are hosted by our team of volunteers for children and teenagers from 6 - 17 years, and the parents and caregivers who care for them. Participants are required to become a member of our website and compete our registration form before using this service. 6 - 12 Years Teens Parents & Caregivers Discord 13+ Facebook Groups Our moderated Facebook groups offer peer to peer support and signposting for families of children & young people living with Long Covid. A Facebook account & membership consent is required. Who are LCK support services for? Long Covid Kids support services are for families, children and young people living with Long Covid from around the world. Parents and Caregivers LCK Connected ChatBox Facebook Children and Young People ages 6 - 17 LCK Connected 6+ Chat Box 8+ Under 8's We are fundraising to be able to extend our services for under 8's. We are inclusive We believe in mutual respect, dignity, fairness, care and equality. We welcome and support all children, young people, their families and caregivers, from every community, without exception.We recognise the challenges families can face in obtaining a diagnosis and welcome members who have had suspected or confirmed COVID-19 infection living with ongoing symptoms. Register to join How do I register for the support services? How to Register Become a member of the WEBSITE using your name and email address. You can do this HERE. Check your inbox / spam folder for an email. Click the button in the email to complete the registration and consent form. Complete the form in full. Receive your 'Confirmation' email and login to access our support services. Login using the LOGIN button at the top of the website. Once you have logged in you can visit the ChatBox Members Page to view the forum and start chatting. Visit. your website profile to add your photo, edit your notification preference and use our support services any time. LCK take the safeguarding of children and young people seriously and require each person using our services to complete the registration process. This helps us to adhere to our Safeguarding Policy. Troubleshooting Please check you are logged into the website. To check that you are logged check you can see your name / profile showing in the top bar of the website. When you are logged in you can edit your notification preferences. There are other FAQs that you can read that might help too. For ongoing troubleshooting issues please contact supportsevices@longcovidkids.org for support. Are LCK support services free? Yes our services are free. We are a charity and rely on donations. Donations are welcome but not expected. Are there any support services for children under 8 years? We welcome children aged 6 - 7 years in LCK Connected if you feel it is the right space for them. LCK hope to be able to provide additional services for younger children soon. During the trial phase of our support services we identified that younger children need an alternative service to those currently on offer, but that some children age 6-7 years may enjoy LCK Connected. We hope to fundraise to be able to run play therapy sessions for younger children in the future. What safeguarding steps are in place? We take safeguarding seriously. LCK adheres to our safeguarding policy and do our best to screen attendees but parents and caregivers are responsible for the safeguarding of their children and young people under 18 and should remain vigilant. LCK requires a parent or carer present with any child under the age of 16 whilst using our support services. An over view of the steps we take Due diligence in the on boarding of volunteers Website members only Registration & consent of members Manual registration verification by team volunteers Age specific channels Terms Of Use Reminder messages about the rules before posting Ongoing part time moderation Ask our members to report concerns Read our Safeguarding Policy Where can I raise issues or concerns? If you have any ongoing concerns that have not been resolved by a moderator please contact the safeguarding officer. In the first instance; Safeguarding Officer Senior Officer Sarah Priest. spriest@longcovidkids.org Unresolved concerns; Safeguarding Lead LCK CEO Sammie Mcfarland smcfarland@longcovidkids.org Where can I find out more? For general enquires about our support services please email supportservices@longcovidkids.org Read our Safeguarding Policy. Read our Terms and Conditions. I have registered on the website but I keep getting “You don’t have permission to access this page” Once you have registered you will be emailed a form to complete giving further details on how to register. This form needs to be completed before access to the LCK Connected booking area and Chatbox is granted. This email sometimes goes into your spam folder, so check there first. If it isn’t there please email supportservices@longcovidkids.org for assistance. I have completed a form and have only been granted access to one area of the support services website. To allow you the opportunity to post in Chatbox in complete confidence your registration only allows you access to one part of the site. For example if on the registration form you specify the user of the website will be parent and caregiver, you will only be granted access to those areas. To get access for your child they will need to register using a DIFFERENT email specifying the age group they would like access to. Email supportservices@longcovidkids.org for further assistance. I have completed the form and I still cannot access the page Try refreshing your browser and trying again. The page sometimes needs a little patience to load, so do give it a chance. I have registered on the website and have been given access to the wrong area, what can I do? If you have been given access to the incorrect area, please email supportservices@longcovidkids.org with the details of the correct are you would like access to and we will amend it for you. What is Long Covid ? Long Covid is the name for the symptoms that carry on for more than four weeks after someone gets COVID-19. It is a descriptive title given by the people who are living with Long Covid to help explain the difference between initial COVID-19 symptoms and ongoing symptoms. How long does it take to get better from Long Covid? We wish we had the answer to this question, but because Long Covid is so new, we just don’t know yet. We can tell you what we know so far. Many children get better in less than three months Some children take longer to get better. Some children have not recovered yet but have improved. There are also some children who have not seen improvement. So as you can see it is a very tricky question to answer. We have learn't a lot since 2020, and there are lots of ways to reduce symptoms to make them more manageable. Some symptoms can be treated. Your doctor will be able to give you and your family some advice about these. Scientists are working hard to understand Long Covid and to develop treatments which we all hope will make people better. Who gets Long Covid? Both children and grown-ups can experience long-lasting symptoms. Because Long Covid is new, we don’t know why some children experience symptoms that seem to go on and on, and why others don’t. This is one of the things doctors and scientists are working on right now. Who can I talk to? Managing any new situation or change in health can cause worry. It’s okay to cry, feel worried or angry but if these emotions become too difficult to deal with, know that there are people who will want to help you manage these feelings. Share how you feel with a trusted adult. There are lots of people who can offer support. Think about who you can talk to at school or at home. You can talk to one of the health care professionals involved in your care. There are many organisations like ChildLine listed at the bottom of his page. It can also help to talk to people who are a similar age to you who have had a similar experience to you. Lots of children have told our team that they enjoy the free online LCK Connected Zoom HangOut sessions we offer, and they like chatting with the friends they make in ChatBox our online forum. You are not alone. There are people who want to help, including us. “What is the bravest thing you’ve ever said” asked the boy, “Help” said the horse.” Charlie Mackesy Kooth Available as an app or on a desktop, Kooth is for CPY age 10-25 and is free, safe, anonymous support accredited by BACP. The Mix 0808 808 4494 (3pm-12am daily) Various avenues of support such as live chat, discussion boards and helpline for CYP age 10-25. Young Minds Textline. Text YM to 85258 (free from EE, O2, Vodafone, 3, Virgin Mobile, BT Mobile, GiffGaff, Tesco Mobile and Telecom Plus). Provides free, 24/7 text support for young people across the UK experiencing a mental health crisis. All texts are answered by trained volunteers, with support from experienced clinical supervisors. Young Minds Website This is a great website that a child or young person can access with excellent resources. Parents can also access it for ways to help support their children. The Emotional Wellbeing and Mental Health Service (EWMHS) Provides advice and support to children, young people and families who are in need of support with their emotional wellbeing or mental health difficulties. Can I talk to other kids with Long Covid? Yes. Lots of children have told our team that they enjoy the free online Zoom HangOut sessions we offer, and they like chatting with the friends they make in ChatBox. ChatBox is an online space for kids living with Long Covid. Kids between the ages of 8-17 years can chat online, be kids, and support each other. There is a different space for each age group to connect with other kids who are in the same age group and who maybe going through a similar experience. It is a great way to make new friends who ‘get it’. If you are under 16 you will need to ask your parent or caregiver to complete the registration form, if you are over 16 you can complete this for yourself. ChatBox Online Forum Online chat forum for kids living with Long Covid. Separate channels for ages; • Age 8-11 years • Age 12-14 years • Age 15+ years • Parents & caregivers ChatBox members can choose to engage in specific topics and discussions that interest them. Connect with other kids who are the same age, or share similar interests and form supportive friendships. ChatBox can be used in between LCK Connected sessions to nurture relationships and gain support. Find out more LCK Connected LCK Connected offers weekly Zoom HangOuts led by our experienced volunteer team and provides a welcoming session for children from ages 6-17 years, parents and caregivers. Members can actively participate and chat with cameras on, others pop in to say ‘Hello’ at the start and then switch their camera off, hang out, chill and listen. Members often choose to continue discussions, friendships and peer-to-peer support via ChatBox Find out more What if nobody believes me ? Long Covid is new, and everybody is learning. Try to talk to your family or trusted adult about how you are feeling. Try to explain how your symptoms affect you. You may find it helpful to show them the information on this website to help them understand more about Long Covid. Consider reaching out to a trusted adult from your extended family (e.g Aunt, Grandparent) or somebody at school. They might be able to help speak to your family for you or with you. Depending on your age you have different rights to seek support without consent and whether or not this support has to be kept private or confidential. You could phone your GP to seek support and they will assess whether you have the capacity to do this. Can I consent to my own treatment? People aged 16 or over are entitled to consent to their own treatment. This can only be overruled in exceptional circumstances. If you are under the age of 16 you can consent to your own treatment if you’re believed to have enough intelligence, and competence to fully understand what’s involved in your treatment. This is known as being Gillick competent. Can I refuse to have treatment? If you refuse treatment, and that refusal could cause you serious harm, your decision can be overruled by the Court of Protection. This is the legal body that oversees the operation of the Mental Capacity Act (2005). If you have refused treatment your parents may consent for you, but it’s usually thought best to go through the courts in this situation. Do I have a right to keep my treatment confidential? Yes. Article 16 of the UN Convention states that children have a right to privacy. This means that you are entitled to respect for privacy and confidentiality, for example, in getting advice and counselling on health matters, depending on your age and understanding. Breaking confidentiality is done only when it is in the best interest of you or the public, required by law or if you give your consent. FAQS Support services

Galeria objawów Long Covid Kids Full Safeguarding Policy Safeguarding Children and Young People LCK Connected and ChatBox are online resources for children and young people with Long Covid to socialise safely online with your peers. We want these sessions to a safe, relaxed space where you can communicate with your peers, make friends and be with people who understand what Long Covid is like. ​ Moderators are available to help everything run smoothly. There is usually at least one adult or teen in moderator available. ​ Should you have any problems during the session you can speak to a trusted adult at home and contact a moderator. If you cant speak to them please email, or ask a parent or guardian to email, Sarah the Senior Moderator, on spriest@longcovidkids.org so that she can help resolve the issue for you. We do not want you worrying or upset about things that have happened in the session. ​ To ensure that these sessions remain a safe place you, Long Covid Kids expects the following from all their participants. ​ Be kind, respect the experiences of others Disagreeing with other participants is natural, we cant always agree, but different opinions shall be respected. We are all allowed to have different opinions. In Zoom Hang Outs all participants shall take turns to speak, no talking over each other. If necessary use the “raise hand” button to make the moderators aware that you wish to speak. Individual messages should not be sent, all communication needs to be through the main chat so it can be monitored for your safety. No one should be made to feel inferior to others due to their gender, race and beliefs. Conversations should not be offensive, rude or mean to other members of the group or people in general. A warning will be given to you by the moderators if you are offensive towards others. If you continue this behaviour after a warning you will be removed from the session and your parents contacted to explain why. Taking screenshots and photos during the session is not allowed and there should be no situation where this is required. Sharing of your personal details – emails, phone numbers, gaming tags, address – is not allowed for your safety. If you wish to share your details please ask your parent or guardian to email supportservices@longcovidkids.org and we will exchange details for you. Long Covid Kids has a responsibility for your safety. Any concerns that are raised while using our services, or afterwards, will be looked into thoroughly and referred on to the appropriate people where necessary. ​ Safeguarding Parents / Caregivers ​ LCK Connected and ChatBox are online resources for children, young people, parents & caregivers living with Long Covid. Support services are not intended to constitute or deliver medical advice or to diagnose, treat or cure Long Covid. Participants are encouraged to share if they feel comfortable, but there is no pressure to do so. ​ Long Covid Kids take their responsibility for safeguarding all participants seriously and has procedures to follow to ensure any issue raised is dealt with effectively and swiftly. A full copy of the Safeguarding Policy can be found at the top of this page. ​ Long Covid Kids has a duty to report all safeguarding concerns to the relevant parties. Depending on the nature of the concern, the parents/carers of the young person involved may not be notified. We aim to have at least one Moderator in the online support room at any time but as a volunteer led service this may not always be possible. The role of the Moderator is to ensure the rules for participation are understood and adhered to by all participants, and that the support group is a safe place for all users. Moderators are not necessarily qualified in a medical or educational capacity, and will not provide any medical advice. ​ In the LCK Connected sessions it is the responsibility of every adult to ensure the participants are safe. Should any parent have any concerns they should immediately raise it with the moderator taking the session. Should you need have any ongoing concerns you can email Sarah, the Senior Moderator on spriest@longcovidkids.org as soon as is reasonably possible. ​ Parents attending the sessions with their young person are responsible for ensuring that their child behaviours accordingly. The Safeguarding Children and Young People policy that lays out the rules and expectations for those taking part in the sessions can be found at the top of this page. Please take time to go through these with your young person and ensure that they understand. ​ Should any adult or young person behave in a way that can be perceived as threatening, inappropriate or offensive, the moderators in the session will issue a warning. Should this behaviour continue they will be removed from the session and an email sent explaining why. ​ ​

Galeria objawów Long Covid Kids Donate today to help us support children to thrive and look forward to a positive future. My Donation I am donating a single payment of enter amount: £ You're about to do something amazing. Increase the impact now If you are a UK taxpayer you can boost your donation by 25p of Gift Aid for every £1 you donate. Gift Aid is reclaimed by Long Covid Kids from the tax you pay for the current tax year. Your address is needed to identify you as a current UK taxpayer. Tick if you are claiming Gift Aid? I am a UK taxpayer and I would like to Gift Aid my donation to Long Covid Kids and any donations I make in the future to Long Covid Kids or have made in the last 4 years. I understand that if I pay less income/capital gains tax than the amount of Gift Aid claimed on all my donations in the tax year in which they are received, it is my responsibility to pay any difference and that I must notify the charity of any changes to my tax status, including changes to my name or address. By completing this section I confirm that this donation is a) my own money and b) is not made as part of a sweepstake, raffle or lottery and I am not receiving anything in return for it. Full Address Postcode You can only claim Gift Aid if you pay tax in the United Kingdom. Donate Thank you for your donation! Find out how we will use your donation? Awareness Raising awareness and early intervention can improve health and learning outcomes for children and young people. ​ We aim to provide families and healthcare professionals and schools with appropriate educational materials. We want to reduce stigma, support and educate. ​ We want to provide the facts clearly in multiple languages so families can make informed decisions about their health. Support To continue to improve the support services we offer, we hope to engage; Youth workers Play Therapists Occupational Therapists Counsellors ​ We run regional meet-ups in local communities to enable families to connect, and kids can meet each other in person. We would like to offer training and resources. Research Long Covid Kids are keen to support coproduced paediatric biomedical research. We understand how important it is that of children and young people inform research. We hope to improve opportunities for our members, and our youth advisory panel and fund research on the long-term impact of Long Covid on children and young people and their families at home and in education. Action The Long Covid Kids team won't give up on our campaigning for improved indoor air quality. We would be thrilled to be able to support schools to achieve this to reduce future risk of transmission and disease. ​ We would like to provide educational materials and information packs to help communities reduce their risk. Other ways to donate and fundraise Send a cheque Payable to; Long Covid Kids & Friends Our registered address is; Fletcher & Partners Crown Chambers Bridge Street SALISBURY SP1 2LZ BACS Long Covid Kids and Friends ​ CAF Cash Account: 00034828 Sort Code: 40-52-40 IBAN: GB28CAFB40524000034828 Start a fundraiser Find creative, set your own challenge, and support Long covid Kids. Find us on Go Fund Me to start your fundraiser Find out more We have found an easy fundraising idea, that won't cost you anything extra. LCK is a volunteer-led, non-profit organisation, which means that every penny really counts. Easy Fundraising has partnerships with over 7,000 brands who will donate part of what you spend on their website to a cause of your choice. It won't cost you any extra. The cost is covered by the brand. Remember to allow the reminder pop-up that will let you know when you are on a site that makes a donation! ​ 7formation, a construction company based in Corby is fundraising for Long Covid Kids this year In July ’21, one of our shareholder's daughter Hannah sadly suffered severely when she contracted Covid. Hannah was incredibly poorly and in October 21 she became much worse, suffering many debilitating symptoms, but among the worst of them was paralysis from the waist down. ​ Pre-Covid, Hannah was a bright, happy, funny, dance-loving, kind and caring 13yr old, that was living a fulfilled life, with every opportunity ahead of her. She loved the school where she thrived and was incredibly happy and settled. Now at 14, she struggles to get through the day, with the many debilitating symptoms and constant pain that she now lives with. Hannah has been affected both physically and neurologically / cognitively. Despite all of this, she is a total inspiration and an amazing and resilient young lady, never complains and just gets on with a smile on her face. She never lets on to others the true suffering that she endures daily. ​ Please help us reach our target and donate today. DONATE Thank you for your support every little helps

Galeria objawów Long Covid Kids All Videos Odtwórz Wideo Odtwórz Wideo 02:58 Our CEO Sammie McFarland BBC News from the Covid Inquiry, 6th December 2023 Odtwórz Wideo Odtwórz Wideo 00:34 #ItCouldHappenToYou | 6th December 2023 | Long Covid Kids #ItCouldHappenToYou Sign our petition urging the government to act now and provide the essential financial investment required for the necessary and significant improvements needed in understanding and addressing this complex health condition. https://bit.ly/46Hjjn1 #ItCouldHappenToYou Find out more about our collaborative campaign with Long Covid Support, Long Covid SOS and Long Covid Physio. https://www.longcovidgroups.org/ #LongCovidKids #CleanAir #CleanTheAirWeShare #CovidInquiry ⭐Visit our website https://www.longcovidkids.org Find us on; ⭐ Facebook ⭐ Instagram ⭐ Twitter ⭐ TikTok ⭐ Bluesky ⭐ LinkedIn ⭐If you are a parent or young person who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group If you are a journalist with a press enquiry or interview request, please contact: Anthony Burr, anthony@burrmedia.co.uk / +44 7766 459469 Odtwórz Wideo Odtwórz Wideo 05:02 Our KC Anthony Metzer Questions Prof James Rubin 18th October 2023 What impact would the absence of public messaging on Long Covid have on protective behaviours in the community to manage the risk of Long Covid? #LongCovidKids #CleanAir #CleanTheAirWeShare #CovidInquiry ⭐Visit our website https://www.longcovidkids.org Find us on; ⭐ Facebook ⭐ Instagram ⭐ Twitter ⭐ TikTok ⭐ Bluesky ⭐ LinkedIn ⭐If you are a parent or young person who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group If you are a journalist with a press enquiry or interview request, please contact: Anthony Burr, anthony@burrmedia.co.uk / +44 7766 459469 Odtwórz Wideo Odtwórz Wideo 04:36 Our KC questions Peter Horby | 18th OCTOBER 2023 | Long Covid Kids #LongCovidKids #CleanAir #CleanTheAirWeShare #CovidInquiry ⭐Visit our website https://www.longcovidkids.org Find us on; ⭐ Facebook ⭐ Instagram ⭐ Twitter ⭐ TikTok ⭐ Bluesky ⭐ LinkedIn ⭐If you are a parent or young person who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group If you are a journalist with a press enquiry or interview request, please contact: Anthony Burr, anthony@burrmedia.co.uk / +44 7766 459469 Odtwórz Wideo Odtwórz Wideo 06:58 Long Covid Group KC questions Prof Kamlesh Khunti at the UK Covid Inquiry #LongCovidKids #CleanAir #CleanTheAirWeShare #CovidInquiry ⭐Visit our website https://www.longcovidkids.org Find us on; ⭐ Facebook ⭐ Instagram ⭐ Twitter ⭐ TikTok ⭐ Bluesky ⭐ LinkedIn ⭐If you are a parent or young person who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group If you are a journalist with a press enquiry or interview request, please contact: Anthony Burr, anthony@burrmedia.co.uk / +44 7766 459469 Odtwórz Wideo Odtwórz Wideo 05:43 Sammie McFarland talks to BBC Radio Solent about the COVID INQUIRY | 4th October 2023 Q - "What did you think of what you heard yesterday?" A - "Shocking, not surprising" Read our PR here: https://www.longcovidkids.org/post/covid-inquiry-position-statement-3rd-october-2023 #LongCovidKids #CleanAir #CleanTheAirWeShare #CovidInquiry ⭐Visit our website https://www.longcovidkids.org Find us on; ⭐ Facebook ⭐ Instagram ⭐ Twitter ⭐ TikTok ⭐ Bluesky ⭐ LinkedIn ⭐If you are a parent or young person who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group If you are a journalist with a press enquiry or interview request, please contact: Anthony Burr, anthony@burrmedia.co.uk / +44 7766 459469 Odtwórz Wideo Odtwórz Wideo 14:47 Opening Statement From The Long Covid Group | UK COVID INQUIRY | 3rd October 2023 | Long Covid Kids "Forgotten, unheard, disbelieved, isolated, unemployed, disabled, immobile. These are the words that characterise the life-altering and devastating experience that people with Long Covid have continued to suffer in the pandemic" Anthony Metzer KC on behalf of the Long Covid Groups. 3/10/2023 Long Covid Kids Long Covid SOS Long Covid Support. If Long Covid was foreseeable, why was it not foreseen? #CovidInquiry #LongCovidKids #LongCovid #CleanTheAirWeShare #CleanAir ⭐Visit our website https://www.longcovidkids.org Find us on; ⭐ Facebook ⭐ Instagram ⭐ Twitter ⭐ TikTok ⭐ Bluesky ⭐ LinkedIn ⭐If you are a parent or young person who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group If you are a journalist with a press enquiry or interview request, please contact: Anthony Burr, anthony@burrmedia.co.uk / +44 7766 459469 Odtwórz Wideo Odtwórz Wideo 04:18 UK Covid 19 Enquiry Opening Statement | 27.09.23 #LongCovidKids #MakeSchoolsSafe ⭐Our Purpose⭐ We believe all children should be able to thrive and look forward to a positive future. That is why we represent and support children and young people living with Long Covid and related illnesses and the parents and caregivers that look after them. ⭐Our Vision⭐ To achieve recognition, support and recovery for Long Covid and related illnesses in children and young people ⭐Our Mission⭐ • Awareness To raise awareness of the symptoms of Long Covid and related illnesses in children and young people to increase understanding, aid early diagnosis and improve response and intervention. • Support To connect and support children and young people living with Long Covid and the parents and caregivers that look after them. • Research To fund and participate in global research to investigate health implications, improve the lived experience and enable recovery. • Action To represent children and young people living with Long Covid in expert forums, research panels, health organisations and parliamentary groups. Find us on; ⭐Facebook - Long Covid Kids - https://www.facebook.com/groups/longcovidkids ⭐Instagram - https://www.instagram.com/long_covid_kids ⭐Twitter - https://twitter.com/LongCovidKids Donate to support our work. https://www.longcovidkids.org/donate Please help us in any way you can. ⭐Share our story. ⭐Follow our social media, share and comment. ⭐If you are a parent or young prison who would like support please visit: https://www.longcovidkids.org/long-covid-kids-support-group We welcome parents from all countries to join us. Awareness. Support. Research. Action. Press enquiries: info@longcovidkids.org Odtwórz Wideo Odtwórz Wideo 03:53 UK Covid Inquiry resumes as government actions during pandemic under scrutiny Lockdowns, travel restrictions and social distancing. The covid years generated a whole new lexicon of terms - familiar to us all - that were born out of Government measures to limit the spread of the disease. (Subscribe: https://bit.ly/C4_News_Subscribe) An examination of how ministers and medical experts came up with the regulations and guidance from the very start of the pandemic is the subject of the second stage of the UK's Covid 19 Inquiry which opened today. Previously unseen evidence is expected to be taken into account including excerpts from the Chief Scientific Officer Patrick Vallance's diaries. ----------------------- Follow us: Facebook - https://www.facebook.com/Channel4News/ Twitter - https://twitter.com/Channel4News TikTok - https://www.tiktok.com/@c4news Instagram - https://www.instagram.com/channel4news/ Odtwórz Wideo Odtwórz Wideo 19:11 Dr Binita Kane on Long Covid in Children Physician Binita Kane, a lung specialist in Manchester, England, and an Honorary Senior Lecturer at the University of Manchester’s School of Biological Sciences, has been outspoken on the subject of long Covid in children. Her passion about the issue has been fueled by her own daughter’s struggle with prolonged symptoms after an acute coronavirus infection. In an article in The Conversation called “Supporting a child with long COVID – tips from parents of children living with the condition,” Dr Kane and two co-authors write this: “The latest figures from the UK’s Office for National Statistics show an estimated 69,000 children are living with long COVID, 41,000 of whom have had symptoms for at least a year…The most common symptoms of long COVID in children are fatigue and headaches, but young people can also have a range of other symptoms including chest pain, persistent cough, dizziness, nausea, abdominal pain, anxiety and low mood.” Dr Kane is currently a voluntary advisor to the group Long COVID Kids. We recently spoke about her own family’s experiences, what she sees happening with other families, and related issues: Odtwórz Wideo Odtwórz Wideo 04:32 ITV Meridian TV Interview with Dr Binita Kane Dr Binita Kane discusses the NHS provision for children with Long Covid, her daughter's treatment in Germany and what the government must do. Broadcast 29th March 2023 Odtwórz Wideo Odtwórz Wideo 05:35 ITV Meridian Long Covid in Children - Report 5 The fifth in a special series of reports from ITV News Meridian - speaking to some of the thousands of children affected by long Covid and the impact it's had on their families. Załaduj więcej

Galeria objawów Long Covid Kids On top of the many issues schools have faced during the pandemic, increasing numbers of children with Long Covid will mean significant new challenges for school staff. Children, young people and their families look to schools for support to manage the wide-ranging impacts on their lives and to help them access their education. They need school staff to believe them, and provide signposting and may need flexible and hybrid learning options that support their wellbeing. Long Covid Kids provide resources and information to support educational staff. Support For Schools This leaflet is free to download and provides bite size essential information for schools . ​ What is Long Covid? The size of the problem What staff need to know What children want their teacher to know What parents want their teacher to know Health effects of indoor air on children and young people Air cleaning solution Resources and support ​ Long Covid Kids Twinkl Resources So what can parents and carers do about Long Covid, and how can they support their child through it? This blog from Twinkl looks at options The effect of Long Covid on children Clean Air Recognising the importance of in-person learning, Long Covid Kids began campaigning for improved indoor air quality for schools in the autumn term of 2020. CO2 Monitors In Schools Corsi Rosenthal Thomas Box Blogs, Publications & Podcasts British Journal of Child Health - Supporting children and young people with long COVID in the classroom ​ ​ British Journal of Child Health - Supporting Children Living with Long Covid to Return to School in September British Journal of Child Health - Summer Holidays with Long Covid Kids WHO - Life as a young person with long COVID: “You go through so many phases of up and down, it’s like being on a rollercoaster forever” SecEd - How can we support pupils who have Long Covid? SecEd - Exhausting, painful, lonely: The impact of Long Covid on children SecEd - Supporting students with Long Covid Headteacher - How can we support pupils who have Long Covid? Edpsy UK - I wish I didn’t have to: becoming the mother of a child with long covid and an EP working with Long Covid Kids. LCK - Long Covid Kids UK Child Specific COVID-19 Infection Analysis ​ ​ ​ Padlets ​ LCK provide five padlets with useful links to articles, resources and information for: ​ Schools and Education Professionals Children Young People Families Health and Social Care Professionals ​ ​

Educational Toolkit 1. An Introduction To Long Covid In Children 2. Returning To Education With Long Covid 3. The Impact Of Long Covid On Education And The Family 4. Supporting Children With Long Covid In The Classroom Learn more about the LCK Educational Toolkit on our blog ​ Click here to see case studies of how schools have supported our members Download The Handbook Download the handbook that accompanies this video series. DOWNLOAD Download The Video Transcripts DOWNLOAD SCRIPT 1 DOWNLOAD SCRIPT 2 DOWNLOAD SCRIPT 3 DOWNLOAD SCRIPT 4

Galeria objawów Long Covid Kids Artykuły i informacje o Covid & Long Covid z całego świata. Wcześniejsze 23 grudnia Należy pilnie przeprowadzić badania, aby wypełnić liczne luki w tej nowej „żywej wytycznej” 21 grudnia Bezobjawowe przenoszenie wirusa COVID-19 Wcześniejsze 22 grudnia Odporność na COVID utrzymuje się przez co najmniej osiem miesięcy, ujawniają nowe dane Wytyczne Covid z 18 grudnia muszą odzwierciedlać przeżyte doświadczenia Wcześniejsze 18 grudnia 2020 Wytyczne NICE dotyczące długich Covid 18 grudnia Wzywamy do ogólnoeuropejskiego zaangażowania na rzecz szybkiego i trwałego ograniczenia zakażeń SARS-CoV-2 15 grudnia Praca w społeczności i Wentylacja w szkole - CDC 15 grudnia Objawy neuroobrazowania u dzieci z zakażeniem SARS-CoV-2: międzynarodowe, wieloośrodkowe wspólne badanie Kary za brak 11 grudnia spadają o 90% 8 grudnia podwyższony biomarker związany z uszkodzeniem naczyń krwionośnych u wszystkich dzieci z SARS-CoV-2 niezależnie od ciężkości choroby 7 grudnia Sprostanie wyzwaniu długiego COVID 3. grudnia Lekarze ostrzegają, że dzieci zakażone COVID-19 mogą być narażone na niewydolność serca i uszkodzenie 3 grudnia Wytyczne HSE dotyczące wentylacji i klimatyzacji podczas pandemii 2nd Dec Long Covid - Lekarze muszą prawidłowo oceniać i badać pacjentów Uszkodzenie płuc z 1 grudnia zidentyfikowane w badaniu 29 listopada Dzieci nie są w porządku: wstępny raport dotyczący zespołu po COVID u studentów uniwersytetu 24 listopada Pediatryczny zespół zapalny Zespół post-Covid 20 listopada - czego pacjenci mogą oczekiwać od swojego lekarza rodzinnego 17 listopada Opis przypadku i systematyczny przegląd sugerują, że dzieci mogą doświadczać podobnych długoterminowych skutków jak dorośli po klinicznym COVID ‐ 19 17 listopada Covid long: Uszkodzenie wielu narządów występuje u młodych pacjentów z grupy niskiego ryzyka 13 listopada Covid-19: upolitycznienie, „korupcja” i tłumienie nauki Projekt wytycznych NICE z 10 listopada dotyczy ciągłej debaty na temat najlepszych ... Mononukleoza 3 listopada , wirus Epsteina-Barra i tiamina Odpowiedź anty-SARS-Cov-2 IgA we łzach pacjentów z COVID-19 15 października 16 października Uszkodzenie wielonarządowe u osób z niskiego ryzyka 4 września Wieloukładowy zespół zapalny u dzieci: przegląd systematyczny 17 sierpnia COVID-19 i wieloukładowy zespół zapalny u dzieci i młodzieży 1 lipca Potencjalne ryzyko zakażenia SARS Covid 2 na zdrowie reprodukcyjne Wcześniejsze 17 czerwca stwierdzono, że COVID-19 wywołuje cukrzycę u zdrowych ludzi 22 maja Patofizjologia SARS-CoV-2: 15 maja Wieloukładowy zespół zapalny u dzieci i młodzieży czasowo związany z COVID19